Now that I have been diagnosed with Pancreatic Cancer, where do I turn for information??

Information & Support Services

Web-based & Telephone

CancerCare
1-800-813-HOPE (4673)
CancerCare is a national, nonprofit organization that helps people face the many challenges of a cancer diagnosis by offering free education and support programs to help patients and loved ones understand and deal with their diagnosis, treatment options, quality-of-life concerns, and other important issues. CancerCare offers Telephone Education Workshops (TEWs), one-hour conference calls presented by experts from around the country. In addition, CancerCare offers free Telephone Support Groups for both pancreatic cancer patients and caregivers.

Cancer Information Service
1-800-4-CANCER / 1-800-332-8615 (TYY)
CIS is a free nationwide cancer information and education network. By calling the toll-free number, cancer patients, their families, people at risk for cancer, and health professionals can receive publications, audiovisual materials (available in English and Spanish) and other information confidentially on all aspects, including treatment and clinical trials.

Cancer.Net
Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of more than 150 medical, surgical, radiation, and pediatric oncologists, oncology nurses, social workers, and patient advocates.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

OncoLink.org
OncoLink, a free on-line service of the University of Pennsylvania Cancer Center, is a complete source of cancer information for patients, their families, caretakers and friends. Visitors can get information on everything from cancer support services, resources, books, to even a special section offering humor called OncoLink LITE.

CancerConnect
CancerConnect is dedicated to providing the most up-to-date information on the treatment and prevention of cancer.

CaringBridge
CaringBridge offers free, private Web sites for people facing a serious health event. Using a CaringBridge Web page, patients and caregivers can share updates, post photos, and receive messages of hope and encouragement through a guestbook.

Vital Options
1-800-477-7666
Vital Options is a telesupport cancer network and the nation's only call-in cancer radio show. It airs The Group Room, a weekly live radio show simulcast on the Web.

The Wellness Community
1-888-793-WELL
Education and support services for cancer patients and their families, including support groups, stress-reduction techniques, cancer education workshops, etc.

ACOR.org
ACOR cancer information system offers patients and their families access to electronic mailing lists and Web sites. The lists are public on-line support groups, which provide information and support to anyone seeking answers about cancer and related disorders.

Johns Hopkins Discussion Forum
This unmoderated discussion forum allows patients to post messages and communicate about pancreas cancer.

John Hopkins iCarebook for Pancreatic Cancer
The Johns Hopkins iPAD application for Pancreatic Cancer is an educational guide for patients, family members and friends facing a diagnosis of pancreatic cancer. Created by leading experts in the field, this interactive application includes text, illustrations, animations and videos. Emphasis is placed on multi-disciplinary care and the team approach.  The App is free and is available in the iTunes store.

https://itunes.apple.com/us/app/icarebook-hd/id697194060?ls=1&mt=8

For a description of the App, please go to their Website:
http://pathology.jhu.edu/pancreas/icarebook/index.php
Johns Hopkins Pancreatic Cancer Blog

Thomas Jefferson University Hosptials Ask the Experts
This forum seeks to build awareness about the condition and give patients, families and caregivers an opportunity learn more about the available treatment options.

Patient Resource Publishing
Patient Resource Publishing provides free, trusted resources to cancer patients, including a Cancer Resource Guide. PRP also manages www.MyCancerAdvisor.com, a Web site dedicated to patient advocacy and empowerment through education.  Visitors to MyCancerAdvisor can share information and connect with others in a community of learning and support.

Whipple Warriors
info@whipplewarriors.org
Whipple Warriors is a group whose mission is to educate, support and advocate for all whipple surgery survivors.

Cancer Care - A Helping Hand
The resources guide for people facing financial challenges.  Order copies of "A Helping Hand" completely free of charge today at www.cancercare.org/publications/order.  supply is limited.
Cancer Legal Resource Center
Cancer Legal Resource Center (CLRC) is a joint program of Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line.

Support Groups & Health Fairs

- Telephone Education Workshop

View Webcast of Medical Update on the Treatment of Pancreatic Cancer
Presented by CancerCare

Ongoing - Community Support Groups

Wellness Centers*

*Supported by the Michael Rolfe Pancreatic Cancer Foundation
Cancer Wellness Center
215 Revere Drive
Northbrook, IL 60062
Phone: 847-509-9595 or 866-292-9355 (toll-free)
Pancreatic Cancer Networking Group meets 2nd Thursday of the month (6:45 – 8:30 p.m.)
Wellness House
131 N. County Line Road
Hinsdale, IL 60521
Phone: 630-323-5150
Pancreatic Cancer Networking Drop-in Group meets 4th Tuesday of the month (7 – 9 p.m.)
Jennifer S. Fallick Cancer Support Center
2028 Elm Road
Homewood, IL 60430
Phone: 708-798-9171
Pancreatic Cancer Networking Drop-in Group meets 4th Wednesday of the month (7:00 – 8:30 p.m.)