Who we are.

Join the fight against pancreatic cancer! The 2015 Pancreatic Cancer Research Walk is Sunday, November 1st at Sloan's Lake Park, Denver, CO.

All the money raised goes directly to pancreatic cancer research thanks to the Lustgarten Foundation!

Thursday, March 31, 2011

Understanding Justice Ginsburg’s Pancreatic Cancer

Feb 2009 from the Wall Street Journal.

This morning U.S. Supreme Court Justice Ruth Bader Ginsburg had surgery for pancreatic cancer, the court said today.


The operation took place at Memorial Sloan-Kettering Cancer Center in New York. The attending surgeon, Murray Brennan, said Ginsburg will likely stay in the hospital for a week to 10 days, according to the court.


Ginsburg, 75 years old, had no symptoms before a CT scan found a small tumor — about one centimeter across — in the center of her pancreas during a routine annual check-up at the National Institutes of Health late last month. Ginsburg was treated for colon cancer in 1999.

Pancreatic cancer can be a particularly deadly form of the disease. The American Cancer Society  predicted about 37,680 Americans would be diagnosed with it in 2008, and 34,290 would die of it.
Brennan, who was chairman of surgery at Sloan-Kettering from 1985 until 2006, is an expert in pancreatic cancer and has held leadership roles in several national medical organizations. A Sloan-Kettering spokeswoman declined to make him available to discuss Justice Ginsburg’s case.





J. Randolph Hecht, a gastroenterologist and medical oncologist at the UCLA Jonsson Comprehensive Cancer Center, tells the Health Blog that most patients are already inoperable when pancreatic cancer is found.

For those whose tumor is still small enough for surgery, there are a couple of “binary” possibilities, he says. The surgery could cure Ginsburg. Or the tumor could return, which, if it happens, usually occurs between one and three years afterward. Once pancreatic cancer recurs, the patient usually dies within a year.
For most patients, the cancer does come back, Hecht says. But based on the limited information the Supreme Court put out, Hecht says her situation sounds good and “she has a reasonable chance for cure.” Patients in whom the cancer is found before symptoms begin typically do best, he explains.
Most pancreatic cancer cases are a form called adenocarcinoma. Unfortunately, Hecht adds, “this is the most deadly of all the major malignancies.”

Apple CEO Steve Jobs had a rarer type of pancreatic cancer, called an islet cell neuroendocrine tumor, which was removed surgically in 2004. If caught early that cancer often responds well to treatment.

Update: The fact that Justice Ginsburg had surgery is a relatively good sign, says Gauri Varadhachary, a pancreatic cancer expert at the University of Texas M.D. Anderson Cancer Center. Most patients have progressed to an inoperable stage of the disease by the time pancreatic cancer is diagnosed. Varadhachary isn’t involved in Justice Ginsburg’s care.

http://blogs.wsj.com/health/2009/02/05/understanding-justice-ginsburgs-pancreatic-cancer/

Wednesday, March 30, 2011

Local Denver Pan Can Affiliate Gets "In-flight" Recognition


Kara Friedrich, the coordinator for Denver Pan Can Affiliate made friends with a flight attendant a few days a go (March 27, 2011) and was able to help rally support for pancreatic cancer.  Proof that every little bit helps.

Get Involved!

Get Involved! Learn the many ways you can raise support for pancreatic cancer research. Walks, events, fundraisers, community events and so much more!
Find out how at Lustgarten's Website ... http://www.lustgarten.org/Page.aspx?pid=690

Tuesday, March 29, 2011

Hereditary Pancreatic Cancer

What is Hereditary (Familial) Pancreatic Cancer?


Today, oncology investigators and clinicians agree that at least 10% of all pancreatic cancers are inherited. This means that pancreatic cancer has a tendency to run in certain families, and scientists want to know why. The risk of developing pancreatic cancer increases 2-fold for a person who has one first-degree relative (mother, father, brother, sister) with the disease. Having multiple affected members increases risk even more. The term Familial Pancreatic Cancer (FPC) is for families with 2 or more family members with pancreatic adenocarcinoma (the most common form of pancreatic cancer).

 

What are Familial Registries and Why are They Important?

Gathering information from families with a history of pancreatic cancer offers an opportunity to study the cause of cancer of the pancreas. This information is helping to devise new ways to diagnose pancreatic cancers in earlier stages, and ultimately, to develop better treatments for the disease. These registries are research-based. While your participation in one of these registries may help investigators learn more about familial pancreatic cancer, your participation in a registry does not substitute for clinical care by your own doctors.

 

What are Surveillance Programs?

A number of research programs studying how best to screen for early pancreatic pre-cancer have also been created. These surveillance programs differ throughout the United States, and each program designs its own research and clinical protocols. For example, some involve periodic screening of individuals with an increased risk of pancreatic cancer using endoscopic ultrasound (EUS). Just as is true for family research registries, your participation in a surveillance program does not substitute for clinical care by your own doctors. All Surveillance Programs and Familial Registries share a common goal: To learn more about the biological cause of familial pancreatic cancer in the hopes of developing early detection strategies and better treatments for the disease.

2011 Pancreatic Cancer Research Walk

Join us in the search for a cure!

We may come from different ‘walks of life,’ but we all join the Pancreatic Cancer Research Walk for the same reasons – to support research aimed at early detection methods, better treatments, and ultimately, a cure for this disease. We join to make a difference in the lives of future generations, and to celebrate those we love.


Since its inception in 2001, Pancreatic Cancer Research Walk has raised more than $12 million!
Thank you for taking a personal role in the fight against pancreatic cancer. This year, we have set our Walk fundraising goal higher than ever, and hope that you too will raise your personal fundraising bar!


2011 Pancreatic Cancer Research Walks


Arizona

Green Valley Walk

Saturday, March 19, 2011 at La Posada Green Valley Campus, Green Valley, AZ

Tempe Walk

Sunday, February 27, 2011 at Tempe Beach Park, Tempe, AZ


California

Fremont Walk

Date to be determined at Lake Elizabeth (Central Park), Fremont, CA
Website coming soon!

Westlake Village Walk/Run

Saturday, February 12, 2011 At Westlake Village City Hall, Westlake Village, CA


Colorado

Denver Walk

Sunday, November 6, 2011 at Sloan's Lake Park, Denver, CO
Website coming soon!


Connecticut

Cromwell 18-Whole Stoll

Sunday, June 26, 2011 Location to be determined
Website coming soon!


Delaware

Wilmington Walk

Saturday, April 30, 2011 at Delcastle Park, Wilmington, DE


Illinois

Chicago Walk/Run

Saturday, June 4, 2011 at Grant Park, Chicago, IL

Naperville Walk

Date to be determined, at Naperville Pavilion, Naperville, IL
Website coming soon!


Indiana

Indianapolis Walk

Date and location to be determined.
Website coming soon!


Iowa

Cedar Rapids Walk

Sunday, September 18, 2011 at Noleridge Lagoon, Cedar Rapids, IA
Website coming soon!


Kansas

Olathe Walk

Sunday, September 25, 2011 at Heritage Park, Olathe, KS
Website coming soon!


Massachusetts

Boston Walk

Sunday, October 2, 2011 at Castle Island, Boston, MA
Website coming soon!

Westborough Run / Walk

Sunday, April 10, 2011 at Westborough Tennis & Swim Club, Westboro, MA

Wilbraham Walk

Date to be determined, Mile Tree School, Wilbraham, MA
Website coming soon!


Missouri

Linn Creek

Date and location to be determined.
Website coming soon!

St. Louis Walk

Saturday, September 10 at Frontier Park, St. Charles, MO
Website coming soon!


New Jersey

Bridgewater Walk

Saturday, September 17, 2011at Duke Island Park, Bridgewater, NJ
Website coming soon!

Monmouth Walk

Sunday, May 15, 2011 at Monmouth University, West Long Branch, NJ

Paramus Walk

Sunday, September 18, 2011 at Bergen Community College, Paramus, NJ
Website coming soon!

Pennsauken Walk

Sunday, October 2, 2011 at Cooper River Park, Pennsauken, NJ
Website coming soon!

Randolph Walk

Sunday, September 18, 2011 at County College of Morris, Randolph, NJ
Website coming soon!


New York

Albany Walk

Sunday, September 11, 2011 at  Elm Avenue Town Park, Delmar, NY
Website coming soon!

Brooklyn Walk

Sunday, May 15, 2011 at Marine Park, Brooklyn, NY

Liverpool Walk

Saturday, June 11, 2011 at Onondaga Lake Park, Liverpool, NY
Website coming soon!

Long Island Walk

Sunday, October 9, 2011 at Jones Beach, Wantagh, NY
Website coming soon!

New York City Walk

Sunday,  April 3, 2011 at Riverside Park, New York, NY

Westchester Walk

Sunday, April 10, 2011 at Rye Town Park and Playland Park, Rye, NY


North Carolina

Charlotte Walk

Saturday, May 14, 2011 at Frank Liske Park, Concord, NC


Pennsylvania

Lehigh Valley Walk

Sunday, September 25, 2011 at Lehigh Parkway, Allentown, PA
Website coming soon!


Texas

Dallas Walk

Date to be determined at Katy Trail, Reverchon Park, Dallas, TX
Website coming soon!


For more information visit: http://www.lustgarten.org/Page.aspx?pid=824

Monday, March 28, 2011

CancerNet Resources

CancerNet offers many cancer resources, including a booklet to help people with advanced cancer and family and caregivers understand the diagnosis and treatment options, discuss options for care and find support. 
Download the booklet at www.cancer.net/patient/Coping/Advanced%20Cancer%20Care%20Planning/Advanced_Cancer_Care_Planning.pdf...

Sunday, March 27, 2011

Building Community Around Pancreatic Cancer

It's unfortunate that so many of us are affected by this awful disease.  On the positive side, we have each other and we have a community uniting to fight the fight and hold each other up.  Here's a look back at last year's walk ...

Saturday, March 26, 2011

Cutting Edge Cancer Care in Boulder


Originally posted in 2007


BOULDER – Colorado’s newest state-of-the-art cancer center has opened in Boulder, integrating high-tech cancer-fighting equipment and expertise with full access to the latest clinical research studies and an extraordinary array of support services for patients.

Designed in a unique partnership between Boulder Community Hospital and Rocky Mountain Cancer Centers, the new center is known as The Tebo Family Medical Pavilion and is located on the Boulder Community Foothills Hospital campus.

“This new facility will provide patients with the latest treatment options,” said John Fleagle, M.D., medical oncologist with Rocky Mountain Cancer Centers. “It integrates medical oncology, radiation oncology, diagnostic imaging and support services under one roof here in the community of Boulder. Having all these services in one facility is a tremendous benefit to our patients.”

“Boulder Community Hospital’s primary mission is to provide area citizens with local access to a comprehensive range of treatment options,” said Margaret Van Cleave, Chief Operating Officer of Boulder Community Foothills Hospital. “The opening of the Tebo Pavilion has definitely improved access to first-rate cancer services for our community.”

The Tebo Family Medical Pavilion began serving patients on July 9. It houses the latest in specialty imaging and radiation oncology services, such as PET/CT imaging, intensity modulated radiation therapy (IMRT) and image-guided radiation therapy (IGRT). In addition, the Tebo Pavilion houses a Center for Integrative Care, an array of complementary therapies that aid healing and recovery. The center includes massage therapy and acupuncture rooms, a small meditation garden, and access to support groups and counseling services.

“It’s been a privilege to work with Boulder Community Hospital on this project,” said Jeffrey R. Poe, Executive Director of Rocky Mountain Cancer Centers. “We are excited about combining our considerable expertise into one facility to better serve this community.”

A community open house will be held Sunday, July 29, from 1:00 p.m. to 4:00 p.m. The public is encouraged to attend.

Rocky Mountain Cancer Centers is Colorado’s largest and most comprehensive provider of cancer care with 20 locations and 70 physicians throughout the state. RMCC physicians are actively involved in leading research, with approximately 140 ongoing clinical trials encompassing all major cancer types. From the Rocky Mountain region’s largest blood and marrow transplant program to the latest in radiation technology, RMCC provides the most advanced care for all type of cancers and blood disorders. For more information visit www.RockyMountainCancerCenters.com or call 303-385-2000.

Boulder Community Hospital is a coordinated network of facilities and skilled personnel providing an expansive range of medical services to people and businesses across Boulder County. As a locally owned and operated non-profit hospital system, Boulder Community is dedicated to meeting the constantly evolving health care needs of county residents. Boulder Community is known across Colorado for its clinical excellence in heart care, cancer, neurosurgery, rehabilitation and sports medicine. BCH provides medical care annually to more than 37,000 emergency patients, 10,700 inpatients, 10,000 surgical patients and 221,000 outpatients. Some 540 physicians in 48 medical specialties have privileges at BCH.

Originally posted: 07/23/2007

For more information about Rocky Mountain Cancer Centers visit: http://www.rockymountaincancercenters.com/

Friday, March 25, 2011

Pancreatic Cancer Treatment Shows Promise: Antibodies attack tissue surrounding tumor

University of Pennsylvania scientists have found a novel way of treating pancreatic cancer which involves attacking the dense tissue surrounding the cancer. Researchers say the new approach shows promise in battling one of the most stubborn of all cancers.

Cancer of the pancreas is one of the deadliest forms of the disease. It is almost always fatal, and current treatments are of little help.

In an effort to find something better, the Pennsylvania researchers developed an antibody that would activate the patient's own immune system to attack the cancer, much like a vaccine.

But lead author Robert Vonderheide says what happened was unexpected. 

Instead of attacking the tumor itself, he says the immune system targeted what's called the scaffold, the dense tissue surrounding the cancer. "And it's a bit like attacking a brick wall by dissolving the mortar in the brick wall without actually having to bash down the bricks themselves. The immune system was able to eat away at this tissue surrounding the cancer, and the cancer really fell apart in the face of that."  

Vonderheide and his colleagues tried the approach on a small number of human patients, just 21. None of them were "cured" of the disease, but several had promising changes, such as reductions in tumor size.

To better understand what was happening in the human patients, the researchers turned to laboratory mice that had been genetically engineered to develop pancreatic cancer.

"And we were able to test this antibody in these mice to understand exactly how it was that their immune system is being turned on," he says. "And it was the insights that we were able to gather in this regard in the laboratory that allowed us to understand what was happening in our patients." 

Vonderheide says the information could help scientists working on new drugs for cancer patients. 

"What's important about that is we now have this tool, this ability to test our ideas in the mice with pancreatic cancer, and only pick those therapies that are successful in the mice before bringing any other therapy forward to patients."

The study by Robert Vonderheide and his colleagues is published in the journal Science.



Read more at: http://www.voanews.com/english/news/health/Pancreas-Treatment-Shows-Promise-118644074.html

High Fructose Death Syrup Linked to Pancreatic Cancer


High Fructose Death Syrup Linked to Pancreatic Cancer

Wednesday, February 10, 2010 - Byron Richards, CCN

High fructose corn syrup should be banned from the food supply. The latest evidence comes from a large study of 60, 524 participants over a 14 year period. Those who consumed on average 5 high fructose corn syrup sweetened sodas per week had nearly double the risk for developing deadly pancreatic cancer.

"The high levels of sugar in soft drinks may be increasing the level of insulin in the body, which we think contributes to pancreatic cancer cell growth," said Mark Pereira, Ph.D., senior author on the study and associate professor in the School of Public Health at the University of Minnesota.

Wednesday, March 23, 2011

Katie Couric's Notebook - Pancreatic Cancer


August 03, 2007 

Katie Couric lost a sister to pancreatic cancer. But today, a new procedure offers hope for early detection, and therefore better treatment options for this deadly disease. (CBSNews.com)

Monday, March 21, 2011

Famous and Pancreatic Cancer: Pete Burness

Did you know that animation director Pete Burness is just one of the many in Hollywood that succumbed to pancreatic cancer?

Wilson D. "Pete" Burness (16 June 1904 – 21 July 1969) was an American animator and animation director. He won two Academy Awards during his career and was perhaps best known for his work on the Mr. Magoo series. He also contributed to the Tom and Jerry series, Looney Tunes, Merrie Melodies, and Rocky and His Friends.

Burness was born in Los Angeles.  His animation career began in 1931, working for Romer Grey and Ted Eshbaugh on Goofy Goat Antics and the unreleased Binko the Cub. In 1933 he transferred to Van Beuren Studios, where he animated the film adaption of The Little King. Burness transferred to Harman-Ising in 1936 and to Metro-Goldwyn-Mayer in 1938. He animated Tom and Jerry at MGM until 1945.

Burness worked briefly for Warner Brothers in 1948 and 1949, animating a number of Looney Tunes and Merrie Melodies shorts. He left Warner to become a director for United Productions of America, animating the popular Mr. Magoo series. Two of his Mr. Magoo shorts, When Magoo Flew (1954) and Mr. Magoo's Puddle Jumper (1956), won Academy Awards for Best Short Subject.

In 1958 Burness left UPA to join Jay Ward Productions as director of Rocky and his Friends and Hoppity Hooper. While working for Jay Ward he co-wrote and was hired to direct 1001 Arabian Nights, featuring Mr. Magoo. Following disputes with producer Stephen Bosustow, he left the project and was replaced by Jack Kinney.

Burness died of pancreatic cancer in 1969.

Read more about Pete Burness at: http://en.wikipedia.org/wiki/Pete_Burness

Sunday, March 20, 2011

Laughter is the best medicine



In these difficult times, sometimes the best thing you can do is take a step back and not take life quite so seriously.  It allows us to catch our breath and look at life in a new way.  Here's one woman's look at her world as a senior. 

Thursday, March 17, 2011

CBS News -- Getting checked out if you have a family member with pancreatic cancer


Early detection is difficult due to a lack of efficient screening for the disease, says Dr. Jennifer Ashton who has advice for those concerned about pancreatic cancer.

Tuesday, March 15, 2011

Famous and Pancreatic Cancer: Jack Benny



Did you know that Jack Benny is just one of the many creative souls in Hollywood who passed away from Pancreatic Cancer?

In October 1974, Benny canceled a performance in Dallas after suffering a dizzy spell, coupled with numbness in his arms. Despite a battery of tests, Benny's ailment could not be determined. When he complained of stomach pains in early December, a first test showed nothing, but a subsequent one showed he had inoperable pancreatic cancer. Choosing to spend his final days at home, he was visited by close friends including George Burns, Bob Hope, Frank Sinatra, Johnny Carson and New Zealand crooner John Rowles. He died on December 26, 1974. Bob Hope delivered the eulogy at his funeral. Two days after his death, he was interred in a crypt at Hillside Memorial Park Cemetery in Culver City, California. Benny's will arranged for flowers, specifically a single long-stemmed red rose, to be delivered to his widow, Mary Livingstone, every day for the rest of her life. Livingstone died nine years later on June 30, 1983.

In trying to explain his successful life, Benny summed it up by stating "Everything good that happened to me happened by accident. I was not filled with ambition nor fired by a drive toward a clear-cut goal. I never knew exactly where I was going."

Read more about Jack Benny at: http://en.wikipedia.org/wiki/Jack_Benny


Thursday, March 03, 2011

Caring Bridge


Often when you are battling a disease like Pancreatic Cancer it's hard to keep up with everyone who loves you.  Caring Bridge is a new Lustgarten partner, and is here to support you through your treatment.  It’s your personal and private journal, guestbook and photo album—all in one place. Sharing your CaringBridge website with your friends and family makes staying in touch easy and stress free.  And best of all, it's free!  Learn more at http://www.caringbridge.org/lustgarten.

Wednesday, March 02, 2011

Lustgarten's Website -- A Great Resource

Patient and Caregiver Workshops

Did you know that The Lustgarten Foundation's website is not only a great way to learn about all the trials and studies they are supporting, but it is also a great resource for finding information to help support you and your family through pancreatic cancer including patient and caregiver workshops.  For more information, their website at http://www.lustgarten.org/Page.aspx?pid=1034&frcrld=1

Support Groups & Health Fairs


April 2011 - Telephone Education Workshop

Medical Update on Pancreatic Cancer April 15 from 1:30 - 2:30 PM Eastern Time
Presented by CancerCare

 

May 2011 - Community Health Fair

Pancreatic Cancer Awareness Lunchtime ProgramMay 12 from 11 - 12:30 PM Eastern Time / RSVP Required
Presented by NYU Langone Cancer Center, NYC in partnership with The Lustgarten Foundation

 

Ongoing - Community Support Groups

Wellness Centers*
*Supported by the Michael Rolfe Pancreatic Cancer Foundation

Cancer Wellness Center
215 Revere Drive
Northbrook, IL 60062
Phone: 847-509-9595 or 866-292-9355 (toll-free)
Pancreatic Cancer Networking Group meets 2nd Thursday of the month (6:45 – 8:30 p.m.)

Wellness House
131 N. County Line Road
Hinsdale, IL 60521
Phone: 630-323-5150
Pancreatic Cancer Networking Drop-in Group meets 4th Tuesday of the month (7 – 9 p.m.)

Jennifer S. Fallick Cancer Support Center
2028 Elm Road
Homewood, IL 60430
Phone: 708-798-9171
Pancreatic Cancer Networking Drop-in Group meets 4th Wednesday of the month (7:00 – 8:30 p.m.)

Urgent Need For Pancreatic Cancer Legislation

From Pan Can ...

Federal Research Funding Analysis Highlights
Urgent Need For Pancreatic Cancer Legislation

Senator Sheldon Whitehouse (D-RI) and Representatives Anna Eshoo (D-CA) and
Leonard Lance (R-NJ) Re-introduce the Pancreatic Cancer Research & Education Act

The Pancreatic Cancer Action Network has released a report, "Pancreatic Cancer: A trickle of federal funding for a river of need", that calls attention to the serious lack of federal resources allocated to pancreatic cancer research which underscores the urgent need for legislation as lawmakers re-introduce the Pancreatic Cancer Research & Education Act on February 16, 2011 on Capitol Hill.

Sen. Whitehouse (D-RI) and Reps. Eshoo (D-CA) and Lance (R-NJ) will be joined by Lisa Niemi Swayze, wife of actor Patrick Swayze, to announce the re-introduction of the bill. Once enacted and fully funded, the Pancreatic Cancer Research & Education Act will ensure that the National Cancer Institute (NCI) takes the necessary steps to address the astounding mortality of pancreatic cancer by developing a long-term comprehensive strategic plan targeting the disease so patient outcomes will improve in the years to come.

"For 40 years, the survival rate for pancreatic cancer has remained in the single digits–despite an increase in the incidence of the disease, despite the fact that it is the fourth leading cause of cancer death and at a time when significant progress has been made on other cancers," stated Julie Fleshman, President and CEO of the Pancreatic Cancer Action Network. "The survival rate for pancreatic cancer has remained relatively the same because the federal government's approach to pancreatic cancer has been relatively the same–provide a trickle of research funding as a response to a river of need."

"Today, the five year survival rate for pancreatic cancer is a dismal six percent. We must work together to change this deadly statistic and the Pancreatic Cancer Research & Education Act is a vital step towards saving the lives of those affected by this devastating disease," stated Rep. Eshoo.

Click to read the press release
Click to read summary of the Pancreatic Cancer Research and Education Act
Click to read Pancreatic Cancer: A trickle of federal funding for a river of need

Tuesday, March 01, 2011

The Last Lecture


Need some inspiration today?  Check out Randy Pauch's Last Lecture. 




From Wikipedia
 
Randolph Frederick "Randy" Pausch (October 23, 1960 – July 25, 2008) was an American professor of computer science and human-computer interaction and design at Carnegie Mellon University (CMU) in Pittsburgh, Pennsylvania.

Pausch learned that he had pancreatic cancer in September 2006, and in August 2007 he was given a terminal diagnosis: "3 to 6 months of good health left". He gave an upbeat lecture titled "The Last Lecture: Really Achieving Your Childhood Dreams" on September 18, 2007 at Carnegie Mellon, which became a popular YouTube video and led to other media appearances. He then co-authored a book called The Last Lecture on the same theme, which became a New York Times best-seller.

Pausch died of complications from pancreatic cancer on July 25, 2008.