Thursday, October 23, 2014
Tiaras, fancy dresses and magic wands are all part of growing up and these two cousins love to play princess. Unfortunately, neither of these budding Cinderellas had the chance to show their grandmother their perfect curtsy or tell her about all the palaces and royal balls in their imagination.
Each year, since their grandmother was diagnosed, their parents have traveled around the country, walking for a cure.
We walk because ... we never got to play princess with our Grandma Hildy.
Wednesday, October 22, 2014
Watch the curePC television public service announcements to find out why so many extraordinary people have joined with Cablevision and The Lustgarten Foundation in the fight against pancreatic cancer.
Posted by Burness Family at 7:00 PM
About Mayo Clinic Cancer Center
Tuesday, October 21, 2014
HIGHLANDS RANCH, Colo. (CBS4) - A hero of a doctor is asking others to be heroes, too, in their communities.
Jill Pechacek, who was recently diagnosed with stage-4 pancreatic cancer, is challenging others to random acts of kindness to benefit their communities. The challenge has spread to all 50 states and internationally.
In her 29:11 challenge, Pechacek is asking people to perform at least 29 random acts of kindness over 11 days, for instance: hugs, homemade cards, opening doors for others and more.
Pechacek is a co-founder and physician at Aspen Family Care in Highlands Ranch. She wrote recently on the practice’s website: “Thank you so much for all the love and support that you have provided my family over these last few weeks! While this time has been very challenging, I have drawn so much hope and inspiration from each one of you. We have been blessed with so many acts of kindness, and while these kind acts are incredible, it is the thoughtfulness behind these acts that is truly the most amazing!”
LINK: Jill Pechacek’s Caring Bridge Site
Her coworkers in Highlands Ranch recently dressed up as superheroes to support the hero she’s been in their lives and careers.
“I love her, I miss her,” a co-worker dressed up as Green Lantern said.
Pechacek said she is overwhelmed by the love and encouragement she’s received. So she had the idea of making that kindness contagious. Her challenge is based on a bible verse about hope. The call went viral.
She read to CBS4’s Kathy Walsh from an email that listed the acts people have performed in her challenge: given to a homeless man, a 100 percent tip to a struggling waiter, a tank of gas filled, more than 37 random hugs and more.
The cancer’s survival rate is 1 percent.
“That’s all I focus on is the 1 percent,” she said, “and I know that I can be there.”
She has beaten the odds before. Twenty years ago, she survived ovarian cancer.
She places her faith in a higher power: “God’s got this” is a motto she invokes often.
“If I can be someone’s hope or someone’s miracle and empower and inspire other people, then I’m honored that God chose me,” she said.
To watch her video or to learn more, CLICK HERE.
Posted by Burness Family at 9:39 PM
Contact: Zachary Rathner
Journal of the National Cancer Institute
Journal of the National Cancer Institute
People who reported dietary intake that was most consistent with the 2005 Dietary Guidelines for Americans had lower risk of pancreatic cancer, according to a new study published August 15 in the Journal of the National Cancer Institute.
Previous studies investigating the relationship between food and nutrient intake and pancreatic cancer have yielded inconsistent results. The U.S. Government issues evidence-based dietary guidelines that provide the basis for federal nutrition policy and education activities to promote overall health for Americans. The authors evaluated how closely study participants' diets matched the 2005 Dietary Guidelines for Americans, as measured by the Healthy Eating Index (HEI-2005), and then compared their risk of pancreatic cancer.
Hannah Arem, Ph.D.,, from the Division of Cancer Epidemiology and Genetics at the National Institutes of Health in Bethesda, MD, and colleagues calculated HEI-2005 scores for 537,218 participants in the NIH-AARP Diet and Health Study (ages 50-71 years), based on responses to food frequency questionnaires. Pancreatic cancer risk was then compared between those with high and low HEI-2005 scores, accounting for the influence of other known pancreatic cancer risk factors.
Among the study participants there were 2,383 new cases of pancreatic cancer. Overall, the investigators observed a 15% lower risk of pancreatic cancer among participants with the highest HEI-2005 score compared to those with the lowest HEI-2005 score. This association was stronger among overweight or obese men compared to men of normal weight, but there was no difference for normal vs. overweight or obese women. While the authors adjusted for known risk factors such as smoking and diabetes status, they caution that other health factors not collected in the questionnaires may be associated with a more healthful diet and might explain some of the observed reduced risk. They also noted that diet is difficult to measure and the HEI-2005 was not designed specifically for the purpose of overall cancer prevention.
According to Arem and colleagues "the Dietary Guidelines for Americans are issued to promote overall health, including the maintenance of a healthy weight and disease prevention. Our findings support the hypothesis that a high-quality diet may also play a role in reducing pancreatic cancer risk." Future studies are needed to confirm these findings.
In an accompanying editorial, Rachel Ballard-Barbash, M.D., and Susan M. Krebs-Smith, Ph.D., from the Applied Research Program at the National Cancer Institute (Bethesda, MD), and Marian L. Neuhouser, Ph.D., from the Cancer Prevention Program in the Division of Public Health Sciences at the Fred Hutchinson Cancer Research Center (Seattle, WA) discuss that progress has been made in understanding associations between diet and cancer risk, but they have not resulted in noticeable changes in cancer incidence in the US. They conclude, "Practical and actionable dietary recommendations that are based on sound research should ultimately reduce patient suffering and treatment-related expenditures from preventable cancers."
Article: NCI Office of Media Relations, firstname.lastname@example.org, 301-496-6641
Article: NCI Office of Media Relations, email@example.com, 301-496-6641
Editorial: Rachel Ballard-Barbash, Ph.D., firstname.lastname@example.org
| pancreatic cancer |
Daily update ⋅ September 6, 2014
Gran off to parliament for debate on cancer
Linda Reardon, from Llantarnam, created the Families in Support of Pancreatic Cancer Awareness group in 2011 after losing three members of her ...
Katie Couric set to host star-studded "Stand Up to Cancer" event
“Stand Up To Cancer” show at 7pm Friday
“Stand Up To Cancer” show at 7pm Friday ... Administration (FDA) of a new combination treatment for pancreatic cancer, as well as FDA “breakthrough ...
From Phone Banks to Facebook: Katie Couric's Stand Up to Cancer Broadcast Plans - Hollywood Reporter
Posted by Burness Family at 6:00 AM
Monday, October 20, 2014
Sunday, October 19, 2014
You can help make a difference! Join the fight and walk for a cure! Register today!
Pre-Registration Fee $50
Walk-In Registration Fee $60
Registration 9:00 am
Walk starts at 10:30 am
Join us on Sunday, November 2, 2014 at Sloan's Lake Park, Denver, CO. Pancreatic Cancer Research Events are a great way to increase funding for research and raise awareness for pancreatic cancer. Lustgarten Foundation Events serve as a wonderful celebration of the progress being made in the fight against this disease, and your important participation provides hope for the future.
Saturday, October 18, 2014
Information & Support Services
Web-based & TelephoneCancerCare
CancerCare is a national, nonprofit organization that helps people face the many challenges of a cancer diagnosis by offering free education and support programs to help patients and loved ones understand and deal with their diagnosis, treatment options, quality-of-life concerns, and other important issues. CancerCare offers Telephone Education Workshops (TEWs), one-hour conference calls presented by experts from around the country. In addition, CancerCare offers free Telephone Support Groups for both pancreatic cancer patients and caregivers.
Cancer Information Service
1-800-4-CANCER / 1-800-332-8615 (TYY)
CIS is a free nationwide cancer information and education network. By calling the toll-free number, cancer patients, their families, people at risk for cancer, and health professionals can receive publications, audiovisual materials (available in English and Spanish) and other information confidentially on all aspects, including treatment and clinical trials.
Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of more than 150 medical, surgical, radiation, and pediatric oncologists, oncology nurses, social workers, and patient advocates.
American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
OncoLink, a free on-line service of the University of Pennsylvania Cancer Center, is a complete source of cancer information for patients, their families, caretakers and friends. Visitors can get information on everything from cancer support services, resources, books, to even a special section offering humor called OncoLink LITE.
CancerConnect is dedicated to providing the most up-to-date information on the treatment and prevention of cancer.
CaringBridge offers free, private Web sites for people facing a serious health event. Using a CaringBridge Web page, patients and caregivers can share updates, post photos, and receive messages of hope and encouragement through a guestbook.
Vital Options is a telesupport cancer network and the nation's only call-in cancer radio show. It airs The Group Room, a weekly live radio show simulcast on the Web.
The Wellness Community
Education and support services for cancer patients and their families, including support groups, stress-reduction techniques, cancer education workshops, etc.
ACOR cancer information system offers patients and their families access to electronic mailing lists and Web sites. The lists are public on-line support groups, which provide information and support to anyone seeking answers about cancer and related disorders.
Johns Hopkins Discussion Forum
This unmoderated discussion forum allows patients to post messages and communicate about pancreas cancer.
John Hopkins iCarebook for Pancreatic Cancer
The Johns Hopkins iPAD application for Pancreatic Cancer is an educational guide for patients, family members and friends facing a diagnosis of pancreatic cancer. Created by leading experts in the field, this interactive application includes text, illustrations, animations and videos. Emphasis is placed on multi-disciplinary care and the team approach. The App is free and is available in the iTunes store.
For a description of the App, please go to their Website:
Johns Hopkins Pancreatic Cancer Blog
Thomas Jefferson University Hosptials Ask the Experts
This forum seeks to build awareness about the condition and give patients, families and caregivers an opportunity learn more about the available treatment options.
Patient Resource Publishing
Patient Resource Publishing provides free, trusted resources to cancer patients, including a Cancer Resource Guide. PRP also manages www.MyCancerAdvisor.com, a Web site dedicated to patient advocacy and empowerment through education. Visitors to MyCancerAdvisor can share information and connect with others in a community of learning and support.
Whipple Warriors is a group whose mission is to educate, support and advocate for all whipple surgery survivors.
Cancer Care - A Helping Hand
The resources guide for people facing financial challenges. Order copies of "A Helping Hand" completely free of charge today at www.cancercare.org/publications/order. supply is limited.
Cancer Legal Resource Center
Cancer Legal Resource Center (CLRC) is a joint program of Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line.
Support Groups & Health Fairs
- Telephone Education WorkshopView Webcast of Medical Update on the Treatment of Pancreatic Cancer
Presented by CancerCare
Ongoing - Community Support Groups
Wellness Centers**Supported by the Michael Rolfe Pancreatic Cancer Foundation
Cancer Wellness Center
215 Revere Drive
Northbrook, IL 60062
Phone: 847-509-9595 or 866-292-9355 (toll-free)
Pancreatic Cancer Networking Group meets 2nd Thursday of the month (6:45 – 8:30 p.m.)
131 N. County Line Road
Hinsdale, IL 60521
Pancreatic Cancer Networking Drop-in Group meets 4th Tuesday of the month (7 – 9 p.m.)
Jennifer S. Fallick Cancer Support Center
2028 Elm Road
Homewood, IL 60430
Pancreatic Cancer Networking Drop-in Group meets 4th Wednesday of the month (7:00 – 8:30 p.m.)