Who we are.

Join the fight against pancreatic cancer! The 2014 Pancreatic Cancer Research Walk is Sunday, November 2nd at Sloan's Lake Park, Denver, CO.

All the money raised goes directly to pancreatic cancer research thanks to the Lustgarten Foundation!

Thursday, October 23, 2014

Why I walk ...

Tiaras, fancy dresses and magic wands are all part of growing up and these two cousins love to play princess. Unfortunately, neither of these budding Cinderellas had the chance to show their grandmother their perfect curtsy or tell her about all the palaces and royal balls in their imagination. 

Each year, since their grandmother was diagnosed, their parents have traveled around the country, walking for a cure.

We walk because ... we never got to play princess with our Grandma Hildy. 

Wednesday, October 22, 2014

Celebrities Join The Fight Against Pancreatic Cancer

Lustgarten Foundation's Pancreatic Cancer Fundraising Walk - Denver shared

Watch the curePC television public service announcements to find out why so many extraordinary people have joined with Cablevision and The Lustgarten Foundation in the fight against pancreatic cancer.

Mayo Clinic Researchers Decode Origin of Inflammation-Driven Pancreatic Cancer

JACKSONVILLE, Fla. — Researchers at Mayo Clinic in Florida have revealed the process by which chronic inflammation of the pancreas, pancreatitis, morphs into pancreatic cancer. They say their findings point to ways to identify pancreatitis patients at risk of pancreatic cancer and to potential drug therapies that might reverse the process.
Walk-In Registration Fee $60MULTIMEDIA ALERT: For audio and video of Geou-Yarh Liou, Ph.D. discussing this study, visit the Mayo Clinic News Network.
The study, published online today in The Journal of Cell Biology, maps how inflammation pushes acinar cells in the pancreas — those that produce digestive enzymes — to transform into duct-like cells. As these cells change, they can acquire mutations that can result in further progression to pancreatic cancer, says senior author Peter Storz, Ph.D., a biochemist and molecular biologist at Mayo Clinic.
"We don't know why these cells reprogram themselves, but it may be because producing enzymes in an organ that is injured due to inflammation may cause more damage," Dr. Storz says. "The good news, however, is that this process is reversible, and we identified a number of molecules involved in this pathway that might be targeted to help push these new duct-like cells back into acinar cells, thus eliminating the risk of cancer development."
The scientists are testing the ability of drugs already on the market to reverse this cellular transformation in the pancreas in mice models of human pancreatic cancer. Dr. Storz's research team traced the pathway leading from inflammation in the pancreas to development of cancer in the organ. They followed what happened once macrophages responded to an inflamed pancreas. Macrophages are a type of white blood cell that eats foreign material in the body.
"The belief in the field has been that macrophages were there to remove damaged cells in the organ," Dr. Storz says. "We found they weren't that benign. In fact, we discovered macrophages themselves drive the transformation and provide the setting for development of cancer."
The research team also discovered that if the pancreas is inflamed, fluid from the pancreas contains signaling molecules that induce acinar cells to transform into duct-like cells. Study co-author Massimo Raimondo, M.D., agastroenterologist, is part of a Mayo team that has developed a method to collect this fluid from the pancreas during a routine upper endoscopy test.
"We want to also investigate whether these two enzymes can serve as an early warning system, a marker of pancreatic cancer risk, in patients with pancreatitis," Dr. Storz says.
"Our hope is that we can detect that risk before cancer happens, and use a treatment that reverses any possibility that pancreatic cancer will develop," he says.
The study was supported by National Institutes of Health grants (CA135102, CA140182 and CA159222), theAmerican Association for Cancer Research, and a Mayo Clinic SPORE in Pancreatic Cancer grant.
Co-authors include Geou-Yarh Liou, Ph.D., Heike Doeppler, Brian Necela, Ph.D., Murli Krishna, M.D., and Howard Crawford, Ph.D.

About Mayo Clinic Cancer Center

As a leading institution funded by the National Cancer Institute, Mayo Clinic Cancer Center conducts basic, clinical and population science research, translating discoveries into improved methods for prevention, diagnosis, prognosis and therapy. For information on cancer clinical trials, call 507-538-7623.

Tuesday, October 21, 2014

In Battle With Cancer, Doctor Asks Others To Perform Acts Of Kindness

October 2014

HIGHLANDS RANCH, Colo. (CBS4) - A hero of a doctor is asking others to be heroes, too, in their communities.

Jill Pechacek, who was recently diagnosed with stage-4 pancreatic cancer, is challenging others to perform random acts of kindness to benefit their communities. The challenge has spread to all 50 states and internationally.

In her 29:11 challenge, Pechacek is asking people to perform at least 29 random acts of kindness over 11 days, for instance: hugs, homemade cards, opening doors for others and more.

Pechacek is a co-founder and physician at Aspen Family Care in Highlands Ranch. She wrote recently on the practice’s website: “Thank you so much for all the love and support that you have provided my family over these last few weeks! While this time has been very challenging, I have drawn so much hope and inspiration from each one of you. We have been blessed with so many acts of kindness, and while these kind acts are incredible, it is the thoughtfulness behind these acts that is truly the most amazing!”

LINK: Jill Pechacek’s Caring Bridge Site

Her coworkers in Highlands Ranch recently dressed up as superheroes to support the hero she’s been in their lives and careers.

“I love her, I miss her,” a co-worker dressed up as Green Lantern said.

Pechacek said she is overwhelmed by the love and encouragement she’s received. So she had the idea of making that kindness contagious. Her challenge is based on a bible verse about hope. The call went viral.

She read to CBS4’s Kathy Walsh from an email that listed the acts people have performed in her challenge: money given to a homeless man, a 100 percent tip to a struggling waiter, a tank of gas filled, more than 37 random hugs and more.

The cancer’s survival rate is 1 percent.

“That’s all I focus on is the 1 percent,” she said, “and I know that I can be there.”

She has beaten the odds before. Twenty years ago, she survived ovarian cancer.

She places her faith in a higher power: “God’s got this” is a motto she invokes often.

“If I can be someone’s hope or someone’s miracle and empower and inspire other people, then I’m honored that God chose me,” she said.

To watch her video or to learn more, CLICK HERE.

Consuming a high-quality diet is associated with lower risk of pancreatic cancer

Contact: Zachary Rathner
Journal of the National Cancer Institute 

People who reported dietary intake that was most consistent with the 2005 Dietary Guidelines for Americans had lower risk of pancreatic cancer, according to a new study published August 15 in the Journal of the National Cancer Institute.

Progress and PromisePrevious studies investigating the relationship between food and nutrient intake and pancreatic cancer have yielded inconsistent results. The U.S. Government issues evidence-based dietary guidelines that provide the basis for federal nutrition policy and education activities to promote overall health for Americans. The authors evaluated how closely study participants' diets matched the 2005 Dietary Guidelines for Americans, as measured by the Healthy Eating Index (HEI-2005), and then compared their risk of pancreatic cancer.
Hannah Arem, Ph.D.,, from the Division of Cancer Epidemiology and Genetics at the National Institutes of Health in Bethesda, MD, and colleagues calculated HEI-2005 scores for 537,218 participants in the NIH-AARP Diet and Health Study (ages 50-71 years), based on responses to food frequency questionnaires. Pancreatic cancer risk was then compared between those with high and low HEI-2005 scores, accounting for the influence of other known pancreatic cancer risk factors.
Among the study participants there were 2,383 new cases of pancreatic cancer. Overall, the investigators observed a 15% lower risk of pancreatic cancer among participants with the highest HEI-2005 score compared to those with the lowest HEI-2005 score. This association was stronger among overweight or obese men compared to men of normal weight, but there was no difference for normal vs. overweight or obese women. While the authors adjusted for known risk factors such as smoking and diabetes status, they caution that other health factors not collected in the questionnaires may be associated with a more healthful diet and might explain some of the observed reduced risk. They also noted that diet is difficult to measure and the HEI-2005 was not designed specifically for the purpose of overall cancer prevention.
According to Arem and colleagues "the Dietary Guidelines for Americans are issued to promote overall health, including the maintenance of a healthy weight and disease prevention. Our findings support the hypothesis that a high-quality diet may also play a role in reducing pancreatic cancer risk." Future studies are needed to confirm these findings.
In an accompanying editorial, Rachel Ballard-Barbash, M.D., and Susan M. Krebs-Smith, Ph.D., from the Applied Research Program at the National Cancer Institute (Bethesda, MD), and Marian L. Neuhouser, Ph.D., from the Cancer Prevention Program in the Division of Public Health Sciences at the Fred Hutchinson Cancer Research Center (Seattle, WA) discuss that progress has been made in understanding associations between diet and cancer risk, but they have not resulted in noticeable changes in cancer incidence in the US. They conclude, "Practical and actionable dietary recommendations that are based on sound research should ultimately reduce patient suffering and treatment-related expenditures from preventable cancers."
Contact Info:
Article: NCI Office of Media Relations, ncipressofficers@mail.nih.gov, 301-496-6641
Editorial: Rachel Ballard-Barbash, Ph.D., barbashr@mail.nih.gov

Pancreatic Cancer in the News

pancreatic cancer
Daily update September 6, 2014
WKBN stands up to cancer
YOUNGSTOWN, Ohio (WKBN) – As part of Stand Up To Cancer, WKBN is ... 20 will raise money for Guthrie in his battle against pancreatic cancer.
Google Plus Facebook Twitter Flag as irrelevant
Gran off to parliament for debate on cancer
Linda Reardon, from Llantarnam, created the Families in Support of Pancreatic Cancer Awareness group in 2011 after losing three members of her ...
Google Plus Facebook Twitter Flag as irrelevant
Drug go-ahead tonic for cancer sufferers
Experts say Abraxane will help extend the lives of patients with metastatic pancreatic cancer by up to two months, and for some patients it can be even ...
Google Plus Facebook Twitter Flag as irrelevant
CBS News
Katie Couric set to host star-studded "Stand Up to Cancer" event
Couric lost her first husband, Jay Monahan, to colon cancer in 1998. Couric's sister, Virginia state senator Emily Couric, died in 2001 from pancreatic ...
Google Plus Facebook Twitter Flag as irrelevant
CBS Local
“Stand Up To Cancer” show at 7pm Friday
“Stand Up To Cancer” show at 7pm Friday ... Administration (FDA) of a new combination treatment for pancreatic cancer, as well as FDA “breakthrough ...
Google Plus Facebook Twitter Flag as irrelevant
Newbury Weekly News Group
Le Tour de Boswell stops in for a Newbury coffee
The charity ride was raising money for Pancreatic Cancer Research Fund following the death two years ago from the disease of Boswell's founder ...
Google Plus Facebook Twitter Flag as irrelevant
Stand Up To Cancer TONIGHT on 6abc
Stand Up to Cancer is also funding a local Dream Team, which is having success with new treatments for pancreatic cancer. As government research ...
Google Plus Facebook Twitter Flag as irrelevant
cancer quotes of hope - Bing Images
This Pin was discovered by Vicky Cramer. Discover (and save!) your own Pins on Pinterest.
Google Plus Facebook Twitter Flag as irrelevant 

Monday, October 20, 2014

Who inspired you to join pancreatic cancer fight?

My uncle inspired me to join the fight against pancreatic cancer.

Meaningful Mondays!

Lustgarten Foundation's Pancreatic Cancer Fundraising Walk - Denver shared

You're not alone in the fight against pancreatic cancer!
Join Lustgarten as we fight to find a cure.

Sunday, October 19, 2014

Walk to honor those with Pancreatic Cancer

Lustgarten's Pancreatic Cancer Research Walk in Denver: 2012 Lustgarten

You can help make a difference!  Join the fight and walk for a cure!  Register today!

Pre-Registration Fee $50
Walk-In Registration Fee $60
Registration 9:00 am
Walk starts at 10:30 am

Join us on Sunday, November 2, 2014 at Sloan's Lake Park, Denver, CO. Pancreatic Cancer Research Events are a great way to increase funding for research and raise awareness for pancreatic cancer. Lustgarten Foundation Events serve as a wonderful celebration of the progress being made in the fight against this disease, and your important participation provides hope for the future.

Saturday, October 18, 2014

Now that I have been diagnosed with Pancreatic Cancer, where do I turn for information??

Information & Support Services

Web-based & Telephone

1-800-813-HOPE (4673)
CancerCare is a national, nonprofit organization that helps people face the many challenges of a cancer diagnosis by offering free education and support programs to help patients and loved ones understand and deal with their diagnosis, treatment options, quality-of-life concerns, and other important issues. CancerCare offers Telephone Education Workshops (TEWs), one-hour conference calls presented by experts from around the country. In addition, CancerCare offers free Telephone Support Groups for both pancreatic cancer patients and caregivers.
Pancreatic Cancer Action
Cancer Information Service
1-800-4-CANCER / 1-800-332-8615 (TYY)
CIS is a free nationwide cancer information and education network. By calling the toll-free number, cancer patients, their families, people at risk for cancer, and health professionals can receive publications, audiovisual materials (available in English and Spanish) and other information confidentially on all aspects, including treatment and clinical trials.

Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of more than 150 medical, surgical, radiation, and pediatric oncologists, oncology nurses, social workers, and patient advocates.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

OncoLink, a free on-line service of the University of Pennsylvania Cancer Center, is a complete source of cancer information for patients, their families, caretakers and friends. Visitors can get information on everything from cancer support services, resources, books, to even a special section offering humor called OncoLink LITE.

CancerConnect is dedicated to providing the most up-to-date information on the treatment and prevention of cancer.

CaringBridge offers free, private Web sites for people facing a serious health event. Using a CaringBridge Web page, patients and caregivers can share updates, post photos, and receive messages of hope and encouragement through a guestbook.

Vital Options
Vital Options is a telesupport cancer network and the nation's only call-in cancer radio show. It airs The Group Room, a weekly live radio show simulcast on the Web.

The Wellness Community
Education and support services for cancer patients and their families, including support groups, stress-reduction techniques, cancer education workshops, etc.

ACOR cancer information system offers patients and their families access to electronic mailing lists and Web sites. The lists are public on-line support groups, which provide information and support to anyone seeking answers about cancer and related disorders.

Johns Hopkins Discussion Forum
This unmoderated discussion forum allows patients to post messages and communicate about pancreas cancer.

John Hopkins iCarebook for Pancreatic Cancer
The Johns Hopkins iPAD application for Pancreatic Cancer is an educational guide for patients, family members and friends facing a diagnosis of pancreatic cancer. Created by leading experts in the field, this interactive application includes text, illustrations, animations and videos. Emphasis is placed on multi-disciplinary care and the team approach.  The App is free and is available in the iTunes store.


For a description of the App, please go to their Website:

Johns Hopkins Pancreatic Cancer Blog

Thomas Jefferson University Hosptials Ask the Experts
This forum seeks to build awareness about the condition and give patients, families and caregivers an opportunity learn more about the available treatment options.

Patient Resource Publishing
Patient Resource Publishing provides free, trusted resources to cancer patients, including a Cancer Resource Guide. PRP also manages www.MyCancerAdvisor.com, a Web site dedicated to patient advocacy and empowerment through education.  Visitors to MyCancerAdvisor can share information and connect with others in a community of learning and support.

Whipple Warriors
Whipple Warriors is a group whose mission is to educate, support and advocate for all whipple surgery survivors.

Cancer Care - A Helping Hand
The resources guide for people facing financial challenges.  Order copies of "A Helping Hand" completely free of charge today at www.cancercare.org/publications/order.  supply is limited.
Cancer Legal Resource Center
Cancer Legal Resource Center (CLRC) is a joint program of Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line.

Support Groups & Health Fairs

- Telephone Education Workshop

View Webcast of Medical Update on the Treatment of Pancreatic Cancer
Presented by CancerCare

Ongoing - Community Support Groups

Wellness Centers*

*Supported by the Michael Rolfe Pancreatic Cancer Foundation
Cancer Wellness Center
215 Revere Drive
Northbrook, IL 60062
Phone: 847-509-9595 or 866-292-9355 (toll-free)
Pancreatic Cancer Networking Group meets 2nd Thursday of the month (6:45 – 8:30 p.m.)
Wellness House
131 N. County Line Road
Hinsdale, IL 60521
Phone: 630-323-5150
Pancreatic Cancer Networking Drop-in Group meets 4th Tuesday of the month (7 – 9 p.m.)
Jennifer S. Fallick Cancer Support Center
2028 Elm Road
Homewood, IL 60430
Phone: 708-798-9171
Pancreatic Cancer Networking Drop-in Group meets 4th Wednesday of the month (7:00 – 8:30 p.m.)