Who we are.

Join the fight against pancreatic cancer! The 2015 Pancreatic Cancer Research Walk is Sunday, November 1st at Sloan's Lake Park, Denver, CO.

All the money raised goes directly to pancreatic cancer research thanks to the Lustgarten Foundation!

Saturday, June 30, 2012

Be a Lustgarten Volunteer


Volunteer

Volunteers are among our greatest assets. Here are some opportunities to consider:

At Our Office Headquarters

If you reside on Long Island and would like to help, we'd love to meet you!
Office hours are weekdays, 9 am – 5 pm ET.

At Our Events

We currently host Walks in states that include (but are not limited to) California, Chicago, Boston, Florida and New York. Volunteers are needed for the following areas: Set-up, registration, greeters/crowd control, distributing refreshments, rest stops, assisting along the route and cheering walkers across the finish line.
In addition to Walks, we also host several fundraising events throughout the year. Volunteers are always need to assist with set-up, registration, and greeting guests.

The Gift of Volunteering

We encourage students, scout groups, and teachers with their classes to get involved.

Volunteers Make It Happen! Contact us today and get involved!

Questions?


Contact Suzanne Beck, Special Events Coordinator, at 516.803.2913 or sbeck@cablevision.com

Friday, June 29, 2012

Cancer League of Colorado


Cancer League of Colorado, Inc. was founded by five women whose families were affected by cancer.  These women personally experienced the heartache that comes with the disease.  From their individual struggles grew a joint commitment to raise money for research and patient care.  Their dream in founding Cancer League is to help find a cure for cancer.
From the beginning, Cancer League has been committed to supporting cancer research and has raised and dispensed approximately $10 million to support Colorado research, patient care and family programs.  Cancer League grants have been made to projects across Colorado and have helped thousands of individuals and families fight cancer.


 Cancer League of Colorado, Inc is a 501(c)(3) non-profit organization composed entirely of volunteers.  Unique to non-profits, Cancer League has no paid staff and no offices.  All operating expenses are covered by membership dues.  Cancer League now has more than 400 volunteer members who share the commitment to fight cancer.  Cancer League of Colorado Bylaws as PDF file


Cancer League of Colorado has a compassionate approach to raising dollars for cancer research and patient services within the State of Colorado. We are a 501 (c) 3, founded in 1969, with the mission of finding a cure for, or the means to control, cancer. We are unique in that our organization has no paid staff and no offices. Membership dues pay for all operating expenses.


Cancer League's philosophy states that, "We are a cohesive, caring group with close relations among our members to work toward our goal of fundraising to find a cure for cancer."

Our compassion is in our caring members, dollars raised, and volunteers' time. We reach out with our advisory boards and the time and effort they put in to directing our grant programs. We are companions together as a group of more than 400 members who give personally of their time to make our mission a reality.


Our Services:

Based on recommendations from our Scientific Advisory Board, each year the Funds Allocation Committee distributes monies for research and service grants. The Scientific Advisory Board is a group of Colorado medical doctors and research specialists who volunteer their time to insure the funds are sent to worthy organizations throughout the state of Colorado. Research for such grants is conducted at several facilities, which include the University of Colorado Health Sciences Center, Colorado State University, Children’s Hospital and the National Jewish Center for Immunology and Respiratory Care. Generally 90% of Cancer 


League’s funds are awarded for research grants; the remaining 10% are awarded to service grants.
Service grants are awarded to organizations for such things as hospice care, educational materials, care to indigent patients and recreational activities for children fighting cancer. Past recipients include Boulder Hospice, Doctors Care, AMC Native American Cancer Research Program, Qualife Wellness, and the Visiting Nurses Association. All organizations benefit patients only in the state of Colorado.


Cancer League of Colorado, Inc. was a founding institution for the Cancer Center at the University of Colorado Health Science Center, the only comprehensive cancer center in the Rocky Mountain Region. (website, Contact: Libby Printz)
The League was also instrumental in funding the Colorado Ronald McDonald House and Qualife, an organization dedicated to improving the quality of life for cancer patients.
Cancer League funded research has been successful in leading to groundbreaking discoveries, particularly in the field of genetic research. Our funding played a major role in the following discoveries:
  • Establishment of a link between DDT and testicular, prostate and breast cancer.
     
  • Discovery of a protein that controls silencing DNA cell processes, which, if mutate, can lead to cancer.
     
  • Identification of cancer-specific gene expression markers.
     
  • Discovery of a region of cell cycle protein, which is essential for its function in regulating normal cell division.
     
  • Discovery of the gene targets involved in acute leukemia in humans.

For more information, visit ... http://www.cancerleague.org/

Thursday, June 28, 2012

Rosemary: A Cancer-Fighting Spice


| Comments (0)

By Lindsey Garner, MD Anderson Staff Writer

rosemary.jpgParsley, sage, rosemary and thyme. To many, these spices are common recipe ingredients or lyrics from a popular 1960s Simon and Garfunkel song.

But research shows that these spices are much more than what they seem. They have the potential to prevent and treat cancer.

Bharat Aggarwal, Ph.D.
, professor in the Department of Experimental Therapeutics at MD Anderson, led a 2009 research study on the use of spices in cancer prevention and treatment. The study covers 41 common dietary spices, including one that shows promise in treating skin cancer -- rosemary.

Combating a common cancer
According to the Skin Cancer Foundation, skin cancer is the most common form of cancer in the United States, with more than 3.5 million cases diagnosed annually.

A 2006 study at the University of Rajasthan in Jaipur, India, tested rosmarinic acid (RosA), a phenolic compound in rosemary, on mice with stage II skin cancer. RosA was shown to suppress tumorigenesis, the formation of new tumors.

In addition, Aggarwal's study showed that rosemary, along with the other 40 spices studied, suppressed and blocked pro-inflammatory pathways in cancer cells. Inflammation is linked to common symptoms in cancer patients, such as depression, fatigue, neuropathic pain, metastases and tumor growth.

Therapeutic uses of rosemary
RosA has a broad range of therapeutic purposes. For example, as an:
  • Anti-inflammatory
  • Antiviral
  • Antimicrobial
  • Antioxidant
  • Anti-allergic
Traditional medical practices in Asian countries use medicinal plants, herbs and spices containing RosA to decrease asthma symptoms and prevent seasonal allergies.

RosA is also found in:
  • Basil
  • Lemon balm
  • Mint
  • Perilla (an eastern medicinal plant)

More studies needed

Aggarwal's study concludes that more evidence is needed to fully demonstrate the potential that spices like rosemary have for preventing and treating cancer.

However, he emphasizes that incorporating spices into one's diet can help improve overall well-being and health.

"It's the best scenario in my mind," he says. "You're not doing any harm. In fact, you have evidence that you're doing some good. What could be better?"

Wednesday, June 27, 2012

Seven Levels of Healing

The Seven Levels of Healing program is designed for patients and families who want to combine the very best conventional medical treatments for cancer and other illnesses with an expanding array of complementary therapies and mind/body approaches to healing. The Program is based on the belief that for healing to be complete, all the dimensions of who we are as human beings -- mental, emotional, spiritual, as well as physical -- must be addressed in a meaningful and effective way.

While supporting patients to find and receive the highest quality medical care and attention to the needs of the physical body, the Program also guides patients and family members through the important and profound dimensions of the mind, heart, and spirit that can profoundly impact all aspects of the healing journey.
The Program coherently addresses seven distinct levels of inquiry and exploration that are necessary for awareness, healing, and transformation to occur at the deepest levels -- and which help patients and family members to navigate the journey as skillfully and effectively as possible.\

Learn more at: http://www.geffenvisions.com/seven_levels_of_healing/index.htm

Tuesday, June 26, 2012

New Patient Check List

A general checklist of things to bring to first oncology appointment


• Valid photo ID, such as a driver's license or passport.


• Completed Patient History Database form. There may be a delay in seeing your physician if you do not have this form completed prior to seeing your physician.


• Your appointment schedule.


• All health insurance and prescription insurance cards.


• Medical information, copies of doctors’ notes and operative reports and any pathology slides that were requested.


• Interpretive reports and actual diagnostic films if requested by your patient access specialist such as CT scans, MRIs, PET scans, ultrasounds, and X-rays must be hand-carried to your first appointment. Your radiology facility may offer to provide copies of these X-rays on a CD, and this is acceptable. However, in order for our radiologists to view outside X-rays on a CD it is critical that they be provided in the proper format. Please instruct your radiology facility providing those films to provide them as DICOM format CDs.


• Please include notes from other physicians for any other medical issues you may have.


• A list of all doctors you would like us to communicate with. Please include the doctor's full name, address and phone number.


• A list of all your prescription and non-prescription medications that you are taking. This request includes vitamins, nutritional supplements, herbal products and over-the-counter drugs.


• Your completed Living Will and Medical Power of Attorney. You or your legally designated representative may also request that your physician prepare an Out-of-Hospital Do-Not-Resuscitate order for you, if appropriate. If you do not have these documents when you arrive for your first appointment, ask to meet with the social worker assigned to your center.


• A list of questions you may want to ask your doctor. Bring a small notebook for keeping notes.


• Comfortable clothing and shoes and a sweater.

• A book, magazines or handwork to help pass the time between appointments.


Check list from MD Anderson's website.

Monday, June 25, 2012

Meet our fighters






From Rocky Mountain Cancer Centers. After a full year of filming, we take a moment to touch base with Rhonda, Cindy and Dale. These cancer fighters reflect on the webisodes, their lives since filming, and how participating in Prove Love Heals has affected them. We thank them for volunteering to share their personal experiences at Rocky Mountain Cancer Centers and for letting thousands of people into their lives.


See the video at www.proveloveheals.com

Sunday, June 24, 2012

Charlotte Rae shares her experience with pancreatic cancer


Uploaded to You Tube by on Jan 20, 2011



Chalotte Rae, familiar to millions of TV viewers as the housemother on the '80s sitcom The Facts of Life, was diagnosed in 2009 with pancreatic cancer, an often-silent killer with few if any symptoms until it is too late.

Some 40,000 new cases of pancreatic cancer are diagnosed each year, and by the time diagnosis is made, up to 80 percent of patients are no longer candidates for treatment.

"I had no symptoms," Rae says. "I had absolutely no symptoms. None whatsoever."

But Rae was, in a way, lucky. Because she had a family history of the disease - her mother, uncle and older sister all died from the disease - she underwent early screening, which detected the cancer at an early stage.

"We're working hard to develop tests for earlier diagnosis," says Howard Reber, M.D., director of the UCLA Pancreatic Cancer Program. The goal is to create something similar to the PSA test now done to detect prostate cancer in its early stages, before it has had a chance to spread. "In patients where we know that there's an increased likelihood of the development of the disease, we can screen them, we can get CT scans, we can get endoscopic ultrasounds," Dr. Reber says.

In Rae's case, the cancer was detected and found to be contained, but it was growing fast. Surgery was performed to remove the cancer, and now, following surgery and chemotherapy, Rae is cancer free.

Learn more about pancreatic cancer at www.pancreas.ucla.edu

Saturday, June 23, 2012

Timer - "Nutritious Dishes"

Another fun reminder that eating healthy is an important part of cancer care.  Sometimes it's easier said then done, but trying to be smart about it goes a long way towards maintaining and regaining your strength.  



Thursday, June 21, 2012

Fight, Fight, Fight. Be a volunteer!


Are you or someone in your family struggling with pancreatic cancer?  

Do you want to get involved and help fight this awful disease?  

Join the team of Coloradans running the Lustgarten Pancreatic Cancer Walk. It's an annual event started by the Phillips Family that's held at Sloan's Lake each November.  

While there is a dedicated team, we can always use more help!!  Not only would you be supporting a great cause, but you'll also have the opportunity to others whose lives have been touched by pancreatic cancer.  We're one community fighting for a cure.



What to volunteer?  Email us at: rphill1126@yahoo.com or kimphillips14@gmail.com

Wednesday, June 20, 2012

Felicity Huffman is making a difference!

Did you know that Felicity Huffman is fighting to find a cure for Pancreatic Cancer?  Check out her TV spot for the Lustgarten Foundation.

http://www.curepc.org/campaign/television/

Tuesday, June 19, 2012

Cancer Survivor Inspiration ...

Interesting blog with thoughts, readings, inspiration and other cool stuff for those whose lives have been met with cancer.

http://cancersurvivorinspiration.blogspot.com/

Sunday, June 17, 2012

Lustgarten wishes everyone a Happy Father's Day


Happy Father's Day from the all the volunteers from the Denver Pancreatic Cancer Walk. 



No matter where your dad may be, today is a day to celebrate the love he has always shared with you!  

How are you spending Father's Day this year?  

Share your stories with us ... comment below. 

Saturday, June 16, 2012

Friday, June 15, 2012

Health Apps: Not All Created Equal


By Laura Nathan-Garner, MD Anderson Staff Writer

Do you use a smartphone or tablet to manage everything in your life -- even your health?

Well, you're not alone. A growing number of people are downloading health apps to help with everything from weight loss to quitting smoking.

But if you're like me, there's a good chance you don't end up using most of the health apps you download -- at least not regularly. That's not surprising, say our health technology experts.

"Many companies are in such a hurry to sell their app that they don't conduct a study to see if users will adopt real, lasting change," says Alexander Prokhorov, M.D., Ph.D., director of MD Anderson's e-Health Technology Program and professor in the Department of Behavioral Science.

Here's some good news, though. There are some effective health apps out there -- if you know what to look for.
Learn how to find these apps in this month's issue of Focused on Health.

You'll get our experts' tips on how to choose apps that can actually help you reach your health goals. And, you can get a head-start on better health with our list of recommended mobile and web apps.

You'll also learn how using our Cancer Risk Check online tool can help you get more out of your next doctor's appointment. Plus, you'll find out how to serve up healthier food portions with the government's new MyPlate icon and interactive tool, the Daily Food Plan.

Wednesday, June 13, 2012

VOTE FOR YOUR FAVORITE CELEBRITY SANDWICH AND HELP SUPPORT THEIR FAVORITE WORTHY CAUSE.


What’s Michael Playing For?

Lustgarten Foundation advances the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer by increasing funding and support of research into the biological mechanisms and clinical strategies related to the prevention, diagnosis, and treatment of pancreatic cancer. Lustgarten Foundations focuses its efforts on facilitating and enhancing the dialogue among members of the medical and scientific communities about basic and clinical research efforts that relate to pancreatic cancer, by heightening public awareness of pancreatic cancer diagnosis, treatment, and prevention and by providing informational support for pancreatic cancer patients, their families, and friends.
Lustgarten Foundation

Lustgarten Foundation
http://www.lustgarten.org/
About Michael Ferraro

As early as childhood, Chef Michael Ferraro’s interest in food took flight revolving around his family’s kitchen table. With Southern Italian parents, Michael was exposed to a style of cooking that fused fine Mediterranean flavors with the quality and freshness of Southern Italy’s ingredients. This authentic Italian home cooking experience paved the road for Michael as he went on to graduate from the Culinary Institute of America at the young age of 20. His driven zeal for the kitchen sparked many prominent opportunities fresh out of the CIA.

Beginning with an internship under Chef Waldy Malouf at Beacon Restaurant, Ferraro’s culinary repertoire continued to flourish. Taking on Chef de Partie at Jean-Georges’, then, two-star restaurant, Mercer Kitchen, he developed and refined his culinary techniques even further. Michael proceeded to New York City’s famed 5-star, 5-diamond Four Seasons Hotel where he served as Chef Tournant. It was here where he extended his skills to all outlets of the hotel, landing him at their fine dining restaurant, Fifty Seven Fifty Seven, pleasing the palettes of New York City’s most exclusive clientele. After spending 3 years with the Four Seasons, Ferraro went on to take the role of Sous Chef at the Biltmore Room working under Chef Gary Robins. At the Biltmore Room, Ferraro was exposed to the creative expressions of Chef Gary Robins’ use of Asian and progressive American cooking techniques. Following the closing of the Biltmore Room, Ferraro took top toque as Chef de Cuisine at Patina Restaurant Groups’ Café Centro.

Drawing on his prior experiences and creativity, Ferraro honed and complimented the classic French flavors at Café Centro by bringing inventive techniques and modern flair to the classic Parisian brasserie. Ferraro’s next move brought him to the fine dining seafood restaurant, Fresh Tribeca.

Ferraro is currently in the kitchen at the popular Soho restaurant, Delicatessen where he has made significant changes to the menu. Ferraro’s vast menu of whimsical comfort food is one you’ll want to select from again and again including such offerings as Roasted Sea Scallops with Sweet Potatoes, Charred Apple, Bacon and Warm Egg Yolk, Grandma’s Meatloaf with Whipped Potatoes and Wilted Kale, and Tuna Tartare with Wasabi Tobiko, Crème Fraiche and Taro Root Chips.

Ferraro is also the Executive Chef of macbar, a restaurant fully dedicated to gourmet macaroni & cheese. Located behind big sister Delicatessen, Chef Ferraro has created a menu full of unique flavors including such standouts asMayan Chipotle with chicken diablo, chihuahua cheese and green onions; Mac Lobsta’ with tender chunks of fresh lobster, cognac, tarragon and marscapone; Mac Quack with duck confit, fontina, caramelized onion and fine herbs; and Carbonara with pancetta, green peas and parmigiano cheese.

His elegantly casual approach to cooking has brought him acclaim from journalists and diners alike.  Chef Ferraro has also been featured on CBS Sunday Morning, Food Network, and the Cooking Channel. This year, Zagat honored Ferraro as one of New York City’s “30-Under-30” Up-and-Coming Chefs to watch.

He will be playing again for The Lustgarten Foundation www.lustgarten.org.

Twitter: http://twitter.com/chefmichaelnyc
Facebook: http://www.facebook.com/DeliNYC


VOTE NOW at 
http://www.makethatsandwich.com/celebrity-chefs/index

Copyright © 2012 Make That Sandwich™ and Mezzetta Foods. www.mezzetta.com | Home - FAQ - Rules - Mezzetta Nation

Inspirational Blogs ...

No matter what type of cancer you have, it's a journey.  Some days are inspirational and some are just hell.  Here are some blogs for a few who chose to share their journey.  


From the Dearly Departed
Follow these heart breaking blogs from first diagnosis to last days.


Baldy’s Blog: Adrian Sudbury was a reporter, and in November 2006 the 25-year-old was promoted to digital journalist. Just two days into his new role, he became seriously ill and was eventually diagnosed with leukemia. With two distinct types of leukemia running at the same time, he was the only person in the world recorded to have this condition. In his blog, Adrian shares his experiences up until his passing.


My Cancer: In May 2006, Leroy Sievers of NPR began a Morning Edition commentary on his fight with cancer by saying, “My doctors are trying to kill me.” For more than two years since, Sievers contributed a monthly commentary to Morning Edition and wrote the daily “My Cancer” blog on NPR.org. This blog details his fight with cancer, including his last days.


Surviving Leukemia: In February of 2007, Seth went to the hospital with what he thought was the flu. After a blood test, he was told he had acute leukemia. Although Seth died later that year, his parents still keep this blog going.


Surviving Ovarian Cancer: Deciding to get back to her body building ways, Suzanne noticed a pain in her side. After seeing her doctors and having surgery, she was diagnosed with ovarian cancer. This blog recounts Suzanne’s journey, with posts in her last days.


Cancer Diva: An administrative assistant in the Houston Chronicle’s sports department, Terry’s had an award-winning blog. In April 2006, she was diagnosed with terminal colon cancer and detailed her life through her blog. Terry gives her readers a candid look at life with cancer, including hospital stays, prescription information, her work on an art car, wig shopping, and holidays.


Brain Hell: A husband and father of two young children, BH was diagnosed with a 100-percent fatal disorder called ALS in January of 2004. He recounts holidays and gives messages of hope. The posts in his last days are particularly moving.

Tuesday, June 12, 2012

Study reveals mystery of how pancreatic cancer escapes immune detection


Researchers at NYU School of Medicine have made a key discovery that could help doctors treat one of the deadliest cancers.

A new study reveals a strategy used by pancreatic cancer cells to tinker with the immune system in a way that enables them to escape destruction by specialized immune cells.

The study, funded by the National Institutes of Health, The Pancreatic Cancer Action Network and by The Irvington Institute Postdoctoral Fellowship Program of the Cancer Research Institute, appears in the June 12 issue of Cancer Cell.

Pancreatic cancer is known for its aggressive nature. Only four percent of patients survive past five years from the time of diagnosis, and currently available therapies are largely ineffective.

"It is extremely important that we learn how the advancement of pancreatic cancer is being regulated in an effort to interrupt the progression of the disease," said senior author Dafna Bar-Sagi, PhD, senior vice president and vice dean for Science and chief scientific officer at NYU School of Medicine.

Using mouse models of pancreatic cancer, Dr. Bar-Sagi and colleagues found that a mutation of the KRAS gene, present in 95 percent of all pancreatic cancers, triggers the expression of a protein called GM-CSF. The tumor-derived GM-CSF then directs accumulation of myeloid-derived suppressor cells in the area surrounding the tumor. These cells suppress the body's natural immune defense reaction to growing tumor cells. In this way, pancreatic cancer cells escape being seen by the body's immune system and are free to grow and divide. Establishment of an immunosuppressive environment around pancreatic cancer cells, therefore, prevents their prompt rejection by the immune system.

Read the full article at http://www.news-medical.net/news/20120612/Study-reveals-mystery-of-how-pancreatic-cancer-escapes-immune-detection.aspx

Detect Pancreatic Cancer Earlier


Monday, June 11, 2012

Top 30 Cancer Inspiration Blogs


Once diagnosed with cancer, patients can feel isolated and alone, even from those closest to them. Using the internet as a tool, now they can reach out to anyone, anywhere in the world who wants to share their experience with this devastating disease. They can research, ask questions, post their own story, or they can simply read the stories of those who have been where they are going. From breast cancer to leukemia, these 50 sites cover a variety of subjects.

Breast Cancer
These blogs deal with everything from life after a mastectomy to caring for your children while undergoing chemotherapy.
1. Breast Cancer Recovery: With over twelve years of experience, this blog specializes in four day retreats for women with breast cancer. There are details on accommodations, activities, and testimonials of past attendees. In addition, there is a link to annual conferences for enhancing the health and quality of their lives, which will feature Elizabeth Edwards for 2009.
2. Breast Cancer Victory: In this outspoken blog, Sylvie takes you through her cancer journey. Diagnosed with breast cancer a few days before her wedding, she tells all. This also includes a frank look at her mastectomy, oophorectomy, and the accompanying menopause.
3. Denver Holistic Health Examiner: With 30 years experience in the Holistic Health Industry, Talismae uses her knowledge to battle breast cancer and help others. Holding two degrees, one in Clinical Psychology and one in Holistic medicine, she has taught at major universities. Her blog includes several posts on naturopathy, diet, and esthetics.
4. My Breast Cancer Blog: This mother tells her story and gives tips for how to deal with the ups and downs of this disease. She has been battling cancer for five years. Her most recent post recounted how her hair has changed for the worse and the flat iron she uses to fight it.
5. Cancer Visa Blog: This blog is a survival guide with honest dialogue that focuses primarily on breast cancer news. It also intended for premenopausal survivors, mothers who have small children, and have been undergoing chemotherapy for over a year. The author has faced issues of fertility, chemotherapy and radiation while pregnant, sexuality, and issues of longevity quality versus quantity.


Communities for Support
These social networking sites allow users to connect, share stories, and get involved in the fight against cancer.
6. Hear Me Roar: Many women who experience a cancer diagnosis gain strength from their fellow survivors and the stories of common experience that emerge from these relationships. The instinct to tell one’s story and to help another along the road is a powerful one for many. This site is a space for women to share their personal stories through essays and in interviews that display the strength, spirit, and humor that define survivorship.
7. Blog For A Cure: This is a community of cancer survivors where you can read, post, or comment on blogs on varying types of the disease. Members can write about anything from chemo visualization to request for prayers. The site also includes photos, memorials, and how to help.
8. Cancer Match: The MySpace of cancer sites, members can create a circle of friends who share a diagnosis, meet or mentor others, write blogs, chat, and post events. Free to use, members can update each other and share pictures. There is even a dating section for those looking for more than a friend.
9. The Cancer Survival Toolbox: A MySpace site for cancer survivors that includes a link to a free audio program. It is designed to help cancer survivors and caregivers develop practical skills to deal with the diagnosis, treatment, and challenges of cancer. The “toolbox” is available by download or by phone.
10. National Coalition For Cancer Survivorship : The oldest survivor-led cancer advocacy organization in the country, they advocate for quality care for all Americans and feature survivor profiles. The NCCS believes in systemic changes in how the nation researches, regulates, finances, and delivers quality cancer care. They also organize a legislative advocacy network that engages constituents across the country in federal cancer-related issues.
11. Out With Cancer: The world’s first program for Gay, Lesbian, Bi and Trans men and women who are diagnosed with cancer. Founded in 2006, this organization was developed by the national Gay men’s cancer organization. A Bi-phobia and Trans-phobia free zone, a member recently posted about his treatments in Mexico City.
12. The LGBT Cancer Project: Launched in September of 2007, this site has received positive responses from both professionals and survivors across the country. Priorities are education, increasing awareness, advocacy, and offering medical consultations. This useful sites also contains information on how statistics and treatments affect the LGBT community.


From the Dearly Departed
Follow these heart breaking blogs from first diagnosis to last days.
13. Baldy’s Blog: Adrian Sudbury was a reporter, and in November 2006 the 25-year-old was promoted to digital journalist. Just two days into his new role, he became seriously ill and was eventually diagnosed with leukemia. With two distinct types of leukemia running at the same time, he was the only person in the world recorded to have this condition. In his blog, Adrian shares his experiences up until his passing.
14. My Cancer: In May 2006, Leroy Sievers of NPR began a Morning Edition commentary on his fight with cancer by saying, “My doctors are trying to kill me.” For more than two years since, Sievers contributed a monthly commentary to Morning Edition and wrote the daily “My Cancer” blog on NPR.org. This blog details his fight with cancer, including his last days.
15. Surviving Leukemia: In February of 2007, Seth went to the hospital with what he thought was the flu. After a blood test, he was told he had acute leukemia. Although Seth died later that year, his parents still keep this blog going.
16. Surviving Ovarian Cancer: Deciding to get back to her body building ways, Suzanne noticed a pain in her side. After seeing her doctors and having surgery, she was diagnosed with ovarian cancer. This blog recounts Suzanne’s journey, with posts in her last days.
17. Cancer Diva: An administrative assistant in the Houston Chronicle’s sports department, Terry’s had an award-winning blog. In April 2006, she was diagnosed with terminal colon cancer and detailed her life through her blog. Terry gives her readers a candid look at life with cancer, including hospital stays, prescription information, her work on an art car, wig shopping, and holidays.
18. Brain Hell: A husband and father of two young children, BH was diagnosed with a 100-percent fatal disorder called ALS in January of 2004. He recounts holidays and gives messages of hope. The posts in his last days are particularly moving.


Celebrities With Cancer
Cancer can happen to anyone, even the rich and famous. These sites are devoted to telling their stories.
19. Celebrity Cancer Diagnosis: This site has up to date information on celebrities with all forms of cancer. People include Farah Fawcett, Robin Roberts, and U.S. Senator George Mitchell. Articles contain topics on first diagnosis, updates, and messages of thanks.
20. Geralyn Lucas: Geralyn was 27 years old and working at 20/20 when she discovered a lump in her breast that was diagnosed as breast cancer. As a result of the diagnosis, she had a mastectomy. She then went on to become author of the best-seller, “Why I Wore Lipstick To My Mastectomy,” and gives inspiring messages of courage. Also included are links to other helpful sites and what the reader can do to join the fight against cancer.
21. Randy Pausch: A professor of computer science at Carnegie Mellon University, Randy learned that he was terminally ill in September of 2006. This led to his now world renowned lecture, entitled “”The Last Lecture: Really Achieving Your Childhood Dreams.” His blog recounts professional and personal highlights, is full of photos, and offers links to the lecture.
22. Christina Applegate: Best known for her role as Kelly Bundy on the television series “Married With Children,” Christina announced her diagnosis with breast cancer in August 2008. After undergoing a double mastectomy, the actress soon returned to work. This site has numerous messages of support for her and others experiencing this disease.


Stories of Hope
From martial arts, to young children, these sites are essential to anyone looking for hope.
23. The American Cancer Society: With stories on many different types of cancer, the ACS provides visitors with a variety of choices. You can browse by type of cancer, or join their Cancer Survivors Network. Highlights include using aikido to battle testicular cancer, a gold medalist in the Paralympics in Athens and Beijing, and a male breast cancer survivor.
24. Children’s Cancer Hospital: Nineteen different children recall their experience with varying types and degrees of cancer. From various backgrounds and different ages, these children give the visitor a candid look at their disease. They also recount their treatment at the hospital and what to expect.
25. Survivor Stories From M.D. Anderson: Cancer patients often find hope and inspiration from the personal stories of others who have faced cancer and won. Another site with testimonials on various types and degrees of cancer, the bloggers share everything. The blogs detail how they and their families coped with cancer, and how it changed their lives for the better.
26. The Mayo Clinic: In 1914, the first Mayo Clinic opened its doors. Today, it treats over half a million people each year. With a special section for cancer, stories range from amyloidosis to vaginal cancer.
27. CancerGuide: Steve Dunn was diagnosed with advanced kidney cancer in 1989 at the age of 32. Only a month after surgery, it was discovered that the cancer had spread to his spine and both lungs. With dozens of stories by others to choose from, he also includes information on clinical trials, cancer basics, and alternative therapies.
28. Cancer Kids: A web-based organization which began in 1997 with one simple objective. The goal was to help children with cancer tell their stories to the world. This is accomplished by providing links to the personal web pages of children who are battling cancer and through the stories section.
29. Breast Cancer Stories: Launched in the summer of 2006, more than 10,000 people log on every month. They post and read stories about the trials of breast cancer and the triumphs of surviving the disease. Patients and care givers can write about their experiences, share their progress with loved ones, read stories, and connect with others who are going through a similar experience.
30. Rare Cancer Support: A site for the rarest cancers, which includes rare benign, borderline, mixed cell tumors, and cancer procedures or treatment stories. RCA’s primary purpose is to disseminate information and provide support to all pediatric and adult rare cancer patients. It’s secondary purpose is to raise awareness and funding for rare cancer research, which seldom benefits from donations made to general cancer research organizations.

Saturday, June 09, 2012

Fight, Fight, Fight. Be a volunteer!


Are you or someone in your family struggling with pancreatic cancer?  

Do you want to get involved and help fight this awful disease?  

Join the team of Coloradans running the Lustgarten Pancreatic Cancer Walk. It's an annual event started by the Phillips Family that's held at Sloan's Lake each November.  

While there is a dedicated team, we can always use more help!!  Not only would you be supporting a great cause, but you'll also have the opportunity to others whose lives have been touched by pancreatic cancer.  We're one community fighting for a cure.

What to volunteer?  Email us at: rphill1126@yahoo.com or kimphillips14@gmail.com

Thursday, June 07, 2012

Are you gay and have cancer? Here's a resource that can help ...

The LGBT Cancer Project: Launched in September of 2007, this site has received positive responses from both professionals and survivors across the country. Priorities are education, increasing awareness, advocacy, and offering medical consultations. This useful sites also contains information on how statistics and treatments affect the LGBT community.

Tuesday, June 05, 2012

National Coalition for Cancer Survivorship

National Coalition For Cancer Survivorship : The oldest survivor-led cancer advocacy organization in the country, they advocate for quality care for all Americans and feature survivor profiles. 

The NCCS believes in systemic changes in how the nation researches, regulates, finances, and delivers quality cancer care. They also organize a legislative advocacy network that engages constituents across the country in federal cancer-related issues.

Sunday, June 03, 2012

Limited Edition Bracelets Benefit The Lustgarten Foundation


The Lustgarten Foundation, London Jewelers, and Roberto Coin are pleased to announce the creation of three Roberto Coin Limited Edition Bracelets designed exclusively to benefit The Lustgarten Foundation.

Woven sterling bangle bracelet with purple overlay, retails for $275, $100 will be donated to The Lustgarten Foundation. The design is also available in sterling silver or 18k yellow gold with a magnetic clasp that has an amethyst stone on one side. Retail price for the silver is $450, $150 will be donated to The Lustgarten Foundation. Retail price for the gold is $1600, $500 will be donated to The Lustgarten Foundation.

Purchase bracelets now or for additional information please call 877.601.9924 or visit any London Jewelers location today.

Friday, June 01, 2012

FRUIT & VEGGIES CUT MEN'S PANCREATIC CANCER RISK


Wondering what to get dear old dad this Father's Day, June 19th? Give him a fruit and veggie basket and you may be decreasing his risk of pancreatic cancer.

According to University of Montreal researchers, men with the highest fruit and vegetable intakes are about half as likely to develop pancreatic cancer as those with the lowest intakes. In particular, the tomato compound lycopene (also highly concentrated in watermelon, red bell pepper and pink grapefruit) conferred protective benefits. Women's pancreatic cancer risk also declined relative to lycopene levels, but less significantly (9% lower risk compared to men's 31% risk reduction).

While pancreatic cancer accounts for just 2% of new cancer cases in the United States, it's the fourth leading cause of cancer deaths, making prevention key. By increasing fruit and vegetable consumption, and eliminating processed meats like hot dogs and sausage -- which, as we discussed in a recent newsletter, can threaten prostate health -- both genders can protect against pancreatic cancer.


http://www.dole.com/NutritionInstituteLanding/NI_Articles/NI_NutritionNewsDesk/NI_NutritionNewsDesk_Details/tabid/990/Default.aspx?contentid=9614