Support for people with pancreatic cancer
Living with a serious disease such as pancreatic cancer is not easy. Some people find they need help coping with the emotional and practical aspects of their disease. Support groups can help. In these groups, patients or their family members get together to share what they have learned about coping with their disease and the effects of treatment. Patients may want to talk with a member of their health care team about finding a support group.
People living with pancreatic cancer may worry about the future. They may worry about caring for themselves or their families, keeping their jobs, or continuing daily activities. Concerns about treatments and managing side effects, hospital stays, and medical bills are also common. Doctors, nurses, and other members of the health care team can answer questions about treatment, diet, working, or other matters. Meeting with a social worker, counselor, or member of the clergy can be helpful to those who want to talk about their feelings or discuss their concerns. Often, a social worker can suggest resources for financial aid, transportation, home care, emotional support, or other services.
Online support groups specifically for pancreatic cancer
Cancercare online support group for pancreatic cancer
www.cancercare.org- Click on "Find Services by Cancer Type" and choose Pancreatic Cancer for counseling links, free educational programs, booklets and financial assistance.
- Provides some services in both English and Spanish
The Wellness Community online support group for pancreatic cancer
www.thewellnesscommunity.org
Click on "Join an Online Support Group" and register.
- Provides some services in both English and Spanish
- For questions, call local chapter, in Massachusetts:
The Wellness Community of Greater Boston
1039 Chestnut Street
Newton Upper Falls, MA
Online chat/discussion rooms and email lists specifically for pancreatic cancer
The Pancreatic Cancer Support & Information eCommunity
http://listserv.acor.org/archives/pancreas-onc.htmlACOR.org, the Association of Cancer Online Resources, provides a number of support group email lists. The pancreatic cancer list is a deep resource of information on the challenges of the disease. A true community, caregivers on the list remain to help those newly diagnosed long after their battles have ended.
- You must subscribe to the list to view the archives or click on "Support and Resources" at the top.
Johns Hopkins Pancreatic Cancer Chat Room
http://www.path.jhu.edu/pancreas/- Click on "For Patients and Family" section for the latest information at Johns Hopkins.
- There is also a Discussion Board on the menu to the left.
Online Chat/Discussion Rooms: General Cancer
Cancercare Online Open Forum
www.cancercare.orgClick on Cancer Care Services, then Support Groups, then Open Forums
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