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Saturday, February 25, 2012

Caregiver Resources from Lustgarten


Visit Lustgarten's site to learn more:

http://www.lustgarten.org/Page.aspx?pid=643


Managing Practical Concerns

Cancer Survival Toolbox
This self-learn audio program is available free-of-charge from the National Coalition for Cancer Survivorship (NCCS). The program is designed to cover topics or skills that can assist individuals with cancer in meeting the challenges of their illness. It is appropriate for individuals facing any stage of the cancer disease, and includes helpful information for family members or caregivers of cancer patients.
CaringBridgeCaringBridge offers free, private Web sites for people facing a serious health event. Using a CaringBridge Web page, patients and caregivers can share updates, post photos, and receive messages of hope and encouragement through a guestbook.
Family Caregiving 101This site provides caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for loved ones. The site provides assistance, answers, ideas and helpful advice.
Family Caregiver Alliance
1-800-445-8106
A public voice for caregivers, FCA offers practical tools and information, support services and other resources.
Lotsa Helping HandsLotsa Helping Hands is a private, web-based caregiving coordination service that allows family, friends, neighbors, and colleagues to create a community to assist a family caregiver with the daily tasks that become a challenge during medical crisis, caregiver exhaustion, etc. 

Support & Information 

CancerNet
The consumer Web site of American Society of Clinical Oncology (ASCO), People Living With Cancer is designed to help patients and their families find accurate, timely, and oncologist-approved information about cancer. In addition to providing detailed information, the site includes access to a medical dictionary and drug database, message boards and opportunities to participate in live chats with cancer experts.
Cancer Supportive Care
This comprehensive guide for patients and their families, based on the bookCancer Supportive Care by Ernest H. Rosenbaum, M.D. and Isadora R. Rosenbaum, M.A, is made available on-line from the Cancer Supportive Care Program.
NFCA educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well-being.
The Well Spouse Association is a nonprofit membership organization that advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.

Home Care & Hospice

Cancer Support CommunityHelpline: 1-800-658-8898
Multilingual Helpline: 1-877-658-8896
Caring Connections provides free resources and information to help people make decisions about end-of-life care/services before a crisis.
Includes information and resources for identifying home care services for individuals with cancer.
NAHC produces a consumer guide, How to Choose a Home Care Provider: A Consumer's Guide.
Hospice Foundation of America

Hospice Net
Information for patients and caregivers on end-of-life issues and bereavement.
Next Step in Care
Comprehensive information and advice to help family caregivers plan various transitions for patients.

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