Live in Albany? Want to Walk for Lustgarten?

 

Albany Pancreatic Cancer Research Walk
Sunday, September 11, 2011
http://www.kintera.org/faf​/home/default.asp?ievent=4​84523


Pre-Registration Fee $50 / Walk-In Registration Fee $60
Registration 8:30 am / Walk starts at 10:30 am


First 400 registered walkers will be guaranteed a goody bag and T-shirt.

Join us on Sunday, September 11, 2011 at the Large Pavilion in Elm Avenue Town Park, Delmar NY as we gather to increase funding for research and raise awareness for pancreatic cancer. Click “Event Information” on the menu bar to find the many activities that precede and follow the actual walk.

Last year, 400 walkers raised a bit over $100,000 for the Lustgarten Foundation, far exceeding the proceeds from 2009’s walk. This year, let’s aim for 500 walkers raising even more as we celebrate the progress being made in the fight against this disease. Your participation provides hope for the future 

Continuing the Fight. Why We Walk.

The Denver Lustgarten Walk is due in large part to the passion and dedication of the Phillips Family.  Their continued effort and support has allowed us to raise money funds for pancreatic cancer research close to home. 


Leading the team is Meg Phillips.  Below is her story and why she continues to march forward with fire and passion.  A big thank you to her not only for her commitment, but for continually being open to sharing her family's story and inspiring others to fight the fight.  You are an inspiration Meg, thank you!


I met my husband, Rich Phillips, in college in 1969 in northeastern Colorado.  We fell in love and started our life together in 1971.

He always had a strong will and always followed his dreams.  One of those dreams was to start a  construction company .  So, to do that, he went to Alaska and worked on the pipeline for 3 years (off and on).  I stayed in Coeur d’ Alene  Idaho with the 3 kids and we saved everything he made and started Phillips Construction in 1978.  We then moved back to Colorado in 1982 and he continued building in the Denver Metro/Douglas County area.

Living in Parker and raising our family, life was good. Rich was very involved with the community, church and coaching the kids activities. eHH       h  Our children were out of school and starting their own lives.  We then began to travel and enjoy being with each other again.

Then in 2004, Rich was beginning to have some health issues and was diagnosed in the fall of 2004.  We started treatment in early 2005.  He was a fighter and determined to win this battle. Remember, he had a strong will and followed his dreams.  His cancer was diagnosed at stage 4 but he still had faith and hope.  He began the daily routine of radiation and weekly chemo, and during this treatment met many people in the same situation as he was.  He became friends with Bill Allan, whose diagnosis and treatment was almost identical to Rich’s.  They would always check on each other and compare notes to see how each one was feeling and if the treatment was helping.   I too became friends with his wife, Pat, who has joined the committee to help with the walk.

As the disease progressed and Rich’s body was suffering   he indicated he wanted to donate his body to science so maybe it would help find a cure for pancreatic cancer. Also, we talked about donations to someplace that did research for pancreatic cancer.  We were guided to the Lustgarten Foundation, by a dear friend of ours.

My daughter wanted to honor and remember her father by starting a walk so we traveled to Boston to participate in the Lustgarten Walk.  We liked what they were doing and asked them to help us start a walk in our community.

We held our Inaugural walk at Sloans Lake in Nov. on 2007.  We have recruited our family and friends to help with this annual event and we have met many people who have known someone with this terrible disease and even some survivors.

So, I feel honored to continue the fight Rich started, by his strong will and dreams, to help find a cure for pancreatic cancer.  It has helped me heal, to understand to the fullest how fragile and short life really is. 

LIVE, LAUGH, LOVE. This is my motto!

A loving and faithful wife

Meg

Cancer survivor honors devoted family

Check out this inspiration story ...


Paula Juhl wants to thank her family for their unwavering support during her 11-year battle with pancreatic cancer. Broadway performer Linda Hart sings a special song titled "Believin' in You" in their honor.


See the video at: http://today.msnbc.msn.com/id/26184891/vp/43252254#43252254

2011 LA Cancer Challenge

The LACC is a magical event steeped in a rich tradition of family, friends and a relentless effort to raise money to find a cure for Pancreatic Cancer. I have had the privilege of serving as Race Director of the LA Cancer Challenge ("LACC") since 1999. Watching the event, now in its 14th year, grow into one of the largest 5K/10K's in Southern California and the single largest fundraiser for the Hirshberg foundation

Please register today at LACancerChallenge.com

Visit pancreatic.org for info and answers about pancreatic cancer. If you know anyone who has been diagnosed with Pancreatic Cancer, please have them contact us to provide patient support!

See the promotional video at http://vimeo.com/25246305

DeSean Jackson -- 2011 Foundation Gala

Posted May 2011

Philadelphia Eagle DeSean Jackson held his Second Annual DeSean Jackson Foundation for Pancreatic Cancer Gala at the WaterWorks in the shadow of the Philadelphia Museum of Art. Gayle, DeSean, Eagle Teammates and Friends honored two Philadelphia greats this year for their work in the community, Renee Chenault Fattah and Patty Jackson.

The event helped raise awareness and funds for Pancreatic Cancer research. With a Silent and Live Auction, and a Photo booth provided by Shutterbooth of Philadelphia.

Learn more and watch a video at http://vimeo.com/24377450

Colorado Sunset

Just taking a moment out from the rat race to take in all that Colorado has to offer.  Here's the Rocky Mountain's at sunset from Glendale, Colorado.


In all the craziness, sometimes we need to catch our breath and remember why we fight for a cure for this awful disease, so we can share moments like these with our families.

1200 miles for Pancreatic Cancer

About	Morgan Hanna, a senior at Kuna High in Kuna, Idaho is running 1200 miles for pancreatic cancer in honor of her grandpa, Richard "Dick" Hanna.

Company Overview	Morgan Hanna a graduate from Kuna High School in Kuna, Idaho is running 1200 miles for pancreatic cancer in honor of her grandfather who has been diagnosed with this disease. Morgan is also involved in her high school spirit squad as a cheerleader. Morgan Hanna is truly an all star in everything she does. She began running in February of 2010, she finds running as a personal challenge and loves th...e way she feels after a really great run. Morgan’s heroes are her two sisters, Skylar and Heather, Skylar currently is working at an orphanage in Thailand and Heather has shown Morgan what hard work and determination can do for you. Morgan states “The whole reason I started running was because my Grandpa has pancreatic cancer, and I wanted to do something to make a difference, even though it may not be the biggest thing.”See More
Mission	The National Pancreatic Cancer Foundation is a 501 (c) 3 nonprofit organization officially formed in May of 2009. The Foundation was formed out of many smaller organizations and volunteers throughout the country that have been active in supporting patients and families of pancreatic cancer since 2004. The primary purpose of the organization is to provide direct service to those individuals afflicted with pancreatic cancer and support for their families while providing the impetus to support early detection and preventative methods for this deadly disease. Pancreatic Cancer is the fourth leading cancer killer and is the only one of the four that is not curable in one form or another. In the last five years over 210,000 individuals have been diagnosed with pancreatic cancer and approximately 193,000 or 92% of those lost their battle during the first year. Only 5% of those afflicted with this deadly disease survive to the fifth year and only 3% survive beyond and eventually succumb to this devastating disease. The lack of funding for early detection methods, preventative measures, education and research is the main cause for the high mortality rate during the first year. While the lack of knowledge of this deadly disease among health care providers has been astonishing, even more so is the absence of early detection and preventative methods available. With the absence of early detection, once diagnosed, many physicians send the patient home and say “there is nothing we can do”. Well, we can do something to help provide a better quality of life by providing Hope through your support and others, Courage to fight on and take a stand against this deadly disease and Faith to believe there will be a cure
Products	Make donations at http://pancreaticcancerfoundation.com/donate. You can also order a shirt like the one Morgan is wearing in the picture by donating at least $25. Include a note for all donations that they are for Morgan's run. There are also pancreatic cancer bracelets for $35. For a shirt, be sure to include your size as well. The shirts run small.

Website	http://pancreaticcancerfoundation.com/

Join Danny Aiello at the premiere of THE SHOEMAKER and support pancreatic cancer research

Purchase tickets now! Join Danny Aiello at the premiere of THE SHOEMAKER, a play by Susan Charlotte and directed by Anthony Marsellis, for a special night honoring The Lustgarten Foundation and the fight against pancreatic cancer on July 20th. For Tickets Call: 646-366-9340

http://www.lustgarten.org/Page​.aspx?pid=602&cid=5&ceid=408&c​erid=0&cdt=7%2F20%2F2011

Celebrity Chef Sandwich Charity Challenge Support Lustgarten

Michael Ferraro from New York, NY, Executive Chef of Delicatessen and macbar. Recently named one of Zagat's "30 Under 30: New York's Hottest Up-and-Comers," Michael competes for the Lustgarten Foundation with his "Pan-Roasted Chicken Thigh Sandwich, Castelvetrano Olive Pesto, Tri Color Roasted Pepper Aioli, Burrata Cheese on Ciabatta Bread."

Please click on the link www.makethatsandwich.com for complete details and to vote for Michael.  If Michael wins, The Lustgarten Foundation will receive $10,000!!  You can vote everyday between now and Labor Day.

Also visit http://www.makethatsandwich.com/celebrity-chefs/profile/12724

Drug Boosts Pancreatic Cancer Survival Rate

http://www.thedenverchannel.com/health/27859160/detail.html

(CNN) -- Researchers comparing pancreatic cancer treatments found notable differences in patient survival rates and quality of life.

French investigators from a private company known as BioMed randomly selected 342 patients with pancreatic cancer. Part of the group was given gemcitabine, the most favored treatment according to oncologists. The other patients were given a combination of four chemotherapy drugs, (oxaliplatin, irinotecan, fluorouracil and leucovorin) known as FOLFIRINOX. The treatments lasted for six months. The purpose of the study was to record the overall survival rates of each group.

Researchers found that even though people on the FOLFIRINOX had a longer average survival rate of 11.1 months, versus the gemcitabine group with 6.8 months, the quality of life for patients on FOLFIRINOX was not as good. At least 5% of patients on the drug combination suffered from low white blood cell counts, fatigue, serious diarrhea, a loss of feeling in their feet and hands, as well as hair loss. After six months, only 31% of patients on FOLFIRINOX reported a decent quality of life, compared with 66% of those on gemcitabine.

Investigators concluded that although the FOLFIRINOX did improve survival rates over gemcitabine, the toxicity of the drug combination caused numerous negative side effects. Therefore investigators recommended that only patients who are younger than 76 years old, and who do not suffer from other health problems use FOLFIRINOX.



Pancreatic cancer is the fourth leading cause of death from cancer in the United States. For most patients, the prognosis is grim. Only about 6 percent of those with the diagnosis live longer than five years.



The study is published in this week's issue of the New England Journal of Medicine. It was funded by the government of France.

A little "hope" in the Boulder sky

Photo Credit: Kori Kloberdanz

Lustgarten Foundation Special Events

The Lustgarten Foundation hosts several annual fundraising events to generate vital dollars for the fight against pancreatic cancer. These include:

Holiday Rock & Roll Bash

Each December, The Lustgarten Foundation teams up with Cablevision Systems Corporation, Rainbow Media and Madison Square Garden, to present the Holiday Rock & Roll Bash. The event features the music of JD & The Straight Shot, led by Cablevision President and CEO James Dolan.

Grand Gourmet

Held at spectacular Oheka Castle, hundreds of guests enjoy an evening of food, friends and fun inside this historic castle built by Otto Kahn as a private residence in 1918. The event includes special auctions with exclusive and unusual prizes.

Marc Lustgarten Memorial Golf Outing

Lustgarten Foundation Board Member, Marcia Lustgarten, along with her close friend, Burton Wallack and his family created the Outing as a way to honor Marc while raising dollars for research. Each year, more than 70 golfers gather for a day on the links, followed by a dinner and awards ceremony.

http://www.lustgarten.org/Page.aspx?pid=653

Live in Colorado? Want to Volunteer?

Are you or someone in your family struggling with pancreatic cancer?  Do you want to get involved and help fight this awful disease?  Join the team of Coloradans running the Lustgarten Pancreatic Cancer Walk. It's an annual event started by the Phillips Family that's held at Sloan's Lake each November.  While there is a dedicated team, we can always use more help!!  Not only would you be supporting a great cause, but you'll also have the opportunity to others whose lives have been touched by pancreatic cancer.  We're one community fighting for a cure.


What to volunteer?  Email us at: rphill1126@yahoo.com or kimphillips14@gmail.com


or visit http://www.volunteermatch.org/search/opp866445.jsp

Senior Emergency Kit Worksheets and Checklists

The Senior Emergency Kit^SM features several worksheets that family caregivers can complete with the help of a senior loved one. This toolkit can be kept in an easy-to-reach location, such as a nightstand, to allow easy access to information.

Checklist of Things to Have in Your File

Keep these documents about your senior loved one in your information management tool file:

• Contact Names and Numbers
• Medication Tracker
• Allergies and Conditions Worksheet
• Doctor Visit Worksheet
• Health Care Proxy
• DNR (Do Not Resuscitate) Order
• Advance Directives such as Living Will and Durable Power of Attorney
• Insurance Policies
• Will and Testament
• Copy of Medicare/Medicaid Card
• Anatomical Gift/Organ Donation Card
• Valuables Designation List

The toolkit is part of the Home Instead Senior Care® network’s Answering the Call^SM program designed to help family caregivers be ready for a call when a senior loved one needs emergency assistance.

Important Contacts

It’s important that a family caregiver has easy access to the medical and business professionals that manage their senior’s affairs in the event of an emergency. List on the worksheet all of those individuals with whom your senior does business.

Important Contact Information Worksheet (PDF)

Medications and Dosages

Tracking medications is one of the most important exercises that a family caregiver can do to help keep an older adult safe from medication accidents. This worksheet is a valuable resource to keep all of a senior’s medications and dosages up-to-date.

Medication Tracker Worksheet (PDF)

Allergies and Conditions

Your loved ones and any emergency workers who may assist your senior in a medical crisis should be aware of allergies or conditions that a senior is suffering from, including:

• Foods
• Seasonal Allergies
• Medications
• Heart Problems
• Diabetes
• Arthritis
• Macular Degeneration

Allergies and Conditions Worksheet (PDF)

Doctor Visit Worksheet

Doctor visits can be confusing for older adults. Take this doctor visit worksheet to an appointment so you can write down questions, answers, and what you need to do next.

Doctor Visit Worksheet (PDF)

Senior Emergency Wallet Card

Keep emergency information quickly available wherever your loved one goes. Information such as emergency contacts, medical data and a medical conditions list are easily available with this wallet card.

Emergency Wallet Card (PDF)

Explore these pages to learn more about:

• One Family’s Tragedy
• Keeping Seniors Safe at Home
• Answering the Call
• Additional Resources

Get helpful tips and articles like these delivered to your email.

Sponsored by Home Instead Senior Care. http://www.caregiverstress.com/2011/04/senior-emergency-kit-worksheets-and-checklists/

Denver residents ask Rep. DeGette for support of Pancreatic cancer research legislation

Posted in March 2010
http://denver.yourhub.com/Denver/Stories/News/Nonprofit/Story~754756.aspx

Volunteers with the Denver affiliate of the Pancreatic Cancer Action Network recently visited U.S. Rep. Diana DeGette's Denver office and met with Senior Congressional Aide Andrea Autobee.

The volunteers were asking for Rep. DeGette's support of the Pancreatic Cancer Research & Education Act (H.R. 745), the first substantive pancreatic cancer legislation introduced in the U.S. Congress.

The Pancreatic Cancer Research and Education Act proposes comprehensive research initiatives and programs that would facilitate finding a cure for pancreatic cancer. Once enacted and fully funded, this legislation will create a more targeted approach to fighting pancreatic cancer and provide scientists with the resources necessary to make significant advances.

Pancreatic cancer is the fourth leading cause of cancer death in the United States and the most deadly among leading cancer killers with a five year survival rate of 5 percent. There are currently no early detection tools or effective treatments. 76 percent of patients die within the first year of diagnosis. This year, over 42,000 people in the United States will be diagnosed with the disease.

Volunteers from the Denver affiliate of the Pancreatic Cancer Action Network will join hundreds of advocates in Washington, D.C. for the organizations Fourth Annual Advocacy Day on June 22 nd. To learn more about the Pancreatic Cancer Action Network and Advocacy Day, visit www.pancan.org

About the Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is the only national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization raises money for direct private funding of research-and advocates for more aggressive federal research funding of medical breakthroughs in prevention, diagnosis and treatment of pancreatic cancer.

The Pancreatic Cancer Action Network fills the void of information and options by giving patients and caregivers reliable, personalized information they need to make informed decisions. We create a sense of hope and community so no one has to face pancreatic cancer alone. The organization helps support individuals and communities all across the country to work together to raise awareness and funds to find a cure for pancreatic cancer.